More Information and Support

February 19, 2019

People often need assistance coping with the emotional and practical aspects of cancer.

General Information and Support

People with cancer and their families often need assistance coping with the emotional and practical aspects of the disease. The organizations providing Spanish-language content are marked with an S.American Cancer Society

800-227-2345, cancer.org

Offers a variety of services to patients and their families and provides printed materials, a glossary and information about cancer. S

American Society of Clinical Oncology

cancer.net

Presents timely, comprehensive, oncologist-approved information for patients and families to help make informed health care decisions. S

Cancer and Careers

cancerandcareers.org

Provides a workbook, educational resources and support for cancer patients about working through treatment and returning to work. S

CancerCare

800-813-4673, cancercare.org

Offers free support‚ information‚ financial assistance and practical help to people with cancer and their loved ones. S

Cancer Hope Network

800-467-3638, cancerhopenetwork.org

Matches patients with cancer and family members with trained volunteer cancer survivors who have recovered from a similar cancer experience.

The Cancer Support Community

888-793-9355,

cancersupportcommunity.org

Provides psychological and social support through nearly 50 affiliate centers, 100 satellite locations and online support services.

Fertile Hope

855-220-7777, fertilehope.org

A division of LIVESTRONG, this organization educates cancer patients about fertility issues.

FORCE

866-288-7475, facingourrisk.org

Facing Our Risk of Cancer Empowered provides support, education and programs to help those facing hereditary breast and ovarian cancer know their healthcare options. S

Imerman Angels

877-274-5529, immermanangels.org

Provides personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers. S

LIVESTRONG Foundation

855-220-7777, livestrong.org

Helps people with cancer through education, public health and research.

National Cancer Institute

800-422-6237, cancer.gov

Provides comprehensive information about cancer and clinical trials, as well as links to cancer centers. S

National Center for Complementary and Integrative Health

888-644-6226, nccam.nih.gov

Provides the latest news, research, events and clinical trials involving complementary medicine. S

National LGBT Cancer Network

212-675-2633, cancer-network.org

The National LGBT Cancer Network was established in 2007 to address the needs of lesbian, gay, bisexual and transgender (LGBT) cancer survivors and those at risk by: educating members of the LGBT community about their increased cancer risks and the importance of screening/early detection; training health care providers to offer culturally competent and safe treatment to LGBT people; advocating for LGBT inclusion in cancer research, media and mainstream cancer organizations; and supporting LGBT cancer survivors through free online support services.

National Pediatric Cancer Foundation

813-269-0955, nationalpcf.org

Funds research to eliminate childhood cancer. The research aims to fast-track less toxic, more targeted treatments through the organization’s research initiative, The Sunshine Project.

Stupid Cancer

877-735-4673, stupidcancer.org

Empowers young adults with cancer through programs, support, education and awareness.

Teen Cancer America

310-208-0400, teencanceramerica.org

Caregiving

Partners with hospitals throughout the United States to develop specialized facilities and services for teens and young adults with cancer. Builds teen-friendly environments, develops standards for age-targeted care, improves collaboration between pediatric and adult specialists and supports dedicated research to improve outcomes and survival rates.Family Caregiver Alliance

800-445-8106, caregiver.org

Offers information and advice, discussion groups and a navigator to help find local resources and services. S

National Alliance for Caregiving

www.caregiver.org

Clinical Trials

Provides support for family caregivers and the professionals who help them, and raises awareness of family caregiving issues.ClinicalTrials.gov

888-346-3656, ClinicalTrials.gov

Offers information for locating federally and privately supported clinical trials for a wide range of diseases and conditions, including cancer.

Coalition of Cancer Cooperative Groups

877-227-8451, CancerTrialsHelp.org

Finances and Insurance

Contains a search engine to find cancer clinical trials close to home, a comprehensive self-study guide and helpful information for patients and caregivers.Benefits Check-Up

800-677-1116, benefitscheckup.org

A free service of the National Council on Aging (NCOA), a nonprofit service and advocacy organization in Arlington, Virginia. Asks questions to help identify benefits that could save patients money and cover the costs of everyday expenses. Patients get a personalized report describing programs that might provide help with medication, food, utilities, legal services, health care, housing, in-home services, taxes, transportation and/or employment training. Apply online or print an application. S

Cancer Financial Assistance Coalition

cancerfac.org

A coalition of financial assistance organizations that has joined forces to help patients with cancer experience better health and well-being by limiting financial challenges, through: facilitating communication and collaboration among member organizations; educating patients and providers about existing resources; and advocating on behalf of patients who bear financial burdens associated with the costs of cancer treatment and care.

Medicare/Medicaid

Contact local/state Department of Social Services or welfare office.

NeedyMeds

needymeds.org

Offers information on patient assistance programs for patients who can’t afford their medications.

Partnership for Prescription Assistance

888-477-2669, pparx.org

Helps qualifying patients without prescription drug coverage get the medicines they need for free or at low cost.

Patient Access Network Foundation

866-316-7263, panfoundation.org

An independent, national organization dedicated to helping federally and commercially insured people living with chronic, life-threatening and rare diseases with the out-of-pocket costs for their prescribed medications. Partnering with donors, health care providers and pharmacies, PAN provides the underinsured access to the treatments they need to best manage their conditions and focus on improving their quality of life. S

The SAMFund

617-938-3484, thesamfund.org

Legal Issues

Supports young adult cancer survivors as they recover from the financial impact of cancer treatment with direct financial assistance and free online support and education. SCancer Legal Resource Center

866-843-2572, disabilityrightslegalcenter.org

Provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers and others coping with cancer. S

Patient Advocate Foundation

800-532-5274, patientadvocate.org

Travel and Housing

Provides education‚ legal counseling and referrals to survivors concerning managed care‚ insurance‚ financial issues‚ job discrimination and debt crisis matters. SAir Charity Network

877-621-7177, aircharitynetwork.org

Provides transportation to patients traveling for treatment.

American Cancer Society Hope Lodge

800-227-2345, cancer.org/hopelodge

More than 30 lodges throughout the U.S. offer free housing to patients and their families traveling for treatment.

Resources by Cancer Type

Bladder Cancer

Bladder Cancer Advocacy Network

888-901-2226, bcan.org

Brain Tumors

Aims to improve public awareness of the disease and increase research directed toward the diagnosis, treatment and cure of bladder cancer.American Brain Tumor Association

800-886-2282, abta.org

Offers free publications, educational programs, support group lists, physician lists, a pen pal program and social service consultations by telephone.

Children’s Brain Tumor Foundation

866-228-4673, cbtf.org

Founded in 1988 by dedicated parents, physicians and friends. Aims to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors through research, support, education and advocacy on behalf of families and survivors. S​​​​​​​

EndBrainCancer

800-574-5703, endbraincancer.org

Dedicated to helping patients with brain cancer and their caregivers access information, resources and rapid treatment.

National Brain Tumor Society

617-924-9997, braintumor.org

Breast Cancer

Provides information on how to cope with brain tumors. SBreastcancer.org

610-642-6550, breastcancer.org

Helps women and their loved ones make sense of the complex medical and personal information about breast health and breast cancer so that they can make the best decisions for their lives. S

Bright Pink

312-787-4412, brightpink.org

The only national nonprofit focused on prevention and early detection of breast and ovarian cancer in young women. Its Women’s Health Provider Education Initiative is centered around a proprietary, research-based lecture, offering the opportunity to educate the next generation of women’s health care providers about how best to identify and manage risk among their patients. S

Living Beyond Breast Cancer

855-807-6386, lbbc.org

Connects people with trusted breast cancer information and a community of support. National conferences, Breast Cancer 360s, the Guides to Understanding Breast Cancer and a toll-free Breast Cancer Helpline are just a few examples of the services that are provided, always at little or no cost. S

Metastatic Breast Cancer Network

888-500-0370, mbcn.org

A national, independent, nonprofit, patient advocacy group dedicated

to the unique concerns of the

women and men living with

metastatic breast cancer.

Susan G. Komen for the Cure

877-465-6636, komen.org

Provides breast health and breast cancer educational materials. S

Young Survival Coalition

877-972-1011, youngsurvival.org

Colorectal Cancer

An international network of breast cancer survivors and supporters dedicated to the issues of women under 40 who are diagnosed with breast cancer. SColon Cancer Alliance

877-422-2030, ccalliance.org

An organization dedicated to championing prevention, funding cutting-edge research, and providing patient support services. S

Fight Colorectal Cancer

877-427-2111, fightcolorectalcancer.org

Gynecologic Cancer

Provides patient support and advocates for research and legislation to improve screening, diagnosis and treatment of colorectal cancer.Foundation for Women’s Cancer

800-444-4441, foundationforwomenscancer.org

Provides education about and awareness of gynecologic cancers. S

National Ovarian Cancer Coalition

888-682-7426, ovarian.org

Provides support, education and hope for women with ovarian cancer and their families. S

Ovarian Cancer National Alliance

866-399-6262, ovariancancer.org

Head and Neck Cancer

Distributes materials and sponsors an annual advocacy conference for survivors and families.Head and Neck Cancer Alliance

866-792-4622, headandneck.org

Provides resources, education and support for patients. Includes a discussion forum and clinical trial information.

Support for People With Oral and Head and Neck Cancer

800-377-0928, spohnc.org

Kidney Cancer

Provides education resources and publications to support patients with oral and head and neck cancer and their families.Kidney Cancer Association

800-850-9132, kidneycancer.org

Leukemia/Lymphoma/Myeloma

Offers information about the diagnosis and treatment of kidney cancer‚ sponsors support groups and provides physician referral information.Cutaneous Lymphoma Foundation

248-644-9014, clfoundation.org

Dedicated to supporting every person affected by cutaneous lymphoma by promoting awareness and education, advancing patient care and fostering research for the best possible outcomes. Aims to ensure that each person with cutaneous lymphoma gets the best care possible. S

International Myeloma Foundation

800-452-2873, myeloma.org

Provides a toll-free hotline‚ seminars and educational materials for patients and their families. S

International Waldenstrom’s Macroglobulinemia Foundation

941-927-4963, iwmf.com

Aims to support everyone affected by Waldenstrom’s macroglobulinemia while advancing the search for a cure, by offering mutual support and encouragement to the Waldenstrom’s macroglobulinemia community and others with an interest in the disease; providing information and educational programs that address patients’ concerns; and promoting and supporting research leading to better treatments, and ultimately, a cure. S

The Leukemia & Lymphoma Society

800-955-4572, lls.org

Provides financial aid for specified treatment expenses and transportation‚ family support groups‚ a professionally supervised peer support program‚ referrals and school re-entry materials. S

Lymphoma Research Foundation

800-500-9976, lymphoma.org

The nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and health care professionals with up-to-date information about this type of cancer. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.

Multiple Myeloma Research Foundation

203-229-0464, themmrf.org

Liver Cancer

Pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. Committed to funding research, and to educating and supporting people with myeloma, their family members, caregivers and health care professionals about the disease and today’s most promising treatment options. SYES, You Can Too

877-937-7478, beatlivertumors.org

Lung Cancer

Provides education and support, including a friend for the journey, teleconferences and a newsletter.Addario Lung Cancer Foundation

650-598-2857,

lungcancerfoundation.org

Offers patient services and programs and funds research that will lead to better, more effective treatments for patients with lung cancer. S

American Lung Association

800-548-8252, lung.org

Working to save lives by improving lung health and preventing lung disease, through education, advocay and research. Its vision is a world free of lung disease. S

Lung Cancer Alliance

800-298-2436, lungcanceralliance.org

Offers educational programs about lung cancer and psychosocial support.

The LUNGevity Foundation

302-417-6100, lungevity.org

Melanoma

Provides support, community and education to patients and survivors of lung cancer.Melanoma Research Foundation

800-673-1290, melanoma.org

Pancreatic Cancer

The largest independent organization devoted to melanoma, committed to the support of medical research and educating patients about prevention, diagnosis and the treatment of melanoma.Pancreatic Cancer Action Network

877-272-6226, pancan.org

Prostate Cancer

Provides information about support networks‚ clinical trials and reimbursement for care. SProstate Cancer Foundation

800-757-2873, pcf.org

Connects patients and loved ones to the latest developments, best practices and news from the prostate cancer treatment pipeline. S

Us TOO International Prostate Cancer Education and Support Network

800-808-7866, ustoo.org

Sarcoma

Educates patients about prostate cancer‚ offers support groups and provides information about treatment. SNational Leiomyosarcoma Foundation

nlmsf.org

Provides patient education opportunities and support through patient/family/caregiver educational programs, collaborating with cancer research centers; provides patient advocacy on legislative issues and initiatives that advance awareness of leiomyosarcoma and research efforts; and promotes and funds leiomyosarcoma research in support of accelerating treatment advancements and breakthroughs.

Sarcoma Alliance

415-381-7236, sarcomaalliance.org

Provides education, support and guidance in finding medical providers, treatment options and more. S

​​​​​​​Sarcoma Foundation

415-381-7236, sarcomaalliance.org

Skin Cancer

Provides education, support and guidance in finding medical providers, treatment options and more. SSkin Cancer Foundation

212-725-5176, skincancer.org

Stomach Cancer

Raises awareness of and educates people about skin cancer, prevention methods and early detection. SDebbie’s Dream Foundation: Curing Stomach Cancer

855-475-1200, debbiesdream.org

Thyroid Cancer

Promotes education and support for people with stomach cancer.ThyCa: Thyroid Cancer Survivors’ Association

877-588-7904, thyca.org

Provides support and education for thyroid cancer survivors. S


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