Survey includes new data illustrating cancer patients’ mindsets during and after treatment.
The National Coalition for Cancer Survivorship (NCCS) presented a web briefing on August 4, 2020 to unveil researching findings from a nationwide survey, conducted by Edge Research, to better understand the cancer patient and survivor journey.
This survey is a follow-up to the 2018-2019 NCCS survey and includes 15 in-depth interviews and an online survey fielded April 15-May 1, 2020 with 1,319 respondents in two groups. A national sample of 840 survivors used quota sampling to ensure it was representative of the adult US cancer population. National sample respondents represent a range of cancer diagnoses, stages, phases of treatment, and perspectives. A companion survey included 479 respondents invited from the NCCS database.
The top findings of the 2020 State of Cancer Survivorship Survey, presented in the August 4, 2020 web briefing, were:
“The survey findings demonstrate consistent themes from our first survey in 2019 — overall, cancer survivors face significant challenges both during and after treatment. While the cancer care team addresses many of the physical effects of cancer treatment, survivors report their care team is not as helpful addressing other effects of their cancer, including fatigue, anxiety, and depression,” said NCCS CEO Shelley Fuld Nasso.
“The data also showed us the differences in the level of empowerment and decision-making when the national sample is compared to patients who are connected to an advocacy organization. Education and empowering patients is an important goal of NCCS, but at the same time, we must move toward a health care system that works for ALL patients, even if they are not able or interested in playing an active role in their care,” she said.
Access the 2020 State of Cancer Survivorship Survey report, executive summary, web briefing recording, infographic, and additional materials related to the survey here.
All data collected are self-reported. This survey used quota sampling to ensure it was representative of the adult US cancer population. It includes oversamples of Black, Hispanics, low income patients, and those over 65 to analyze these groups with more statistical reliability.
Founded by and for cancer survivors in 1986, the National Coalition for Cancer Survivorship is the voice in Washington, DC, for survivorship issues. NCCS advocates for cancer care system reforms that prioritize the needs of all those touched by cancer at every phase of cancer care. NCCS empowers cancer survivors and advocates to ensure cancer care is the best possible for survivors, from the time of their diagnosis onward. With a humanistic approach to cancer care, we will improve the quality of life and inspire hope for patients and their loved ones.