“Cancer while black” is a metaphor for what it means to live while Black in America carrying the historical trauma of systemic and structural racism across generations.
The Tigerlily Foundation and Guiding Researchers and Advocates for Scientific Partnerships (GRASP) October conversation was co-hosted by keynote speaker, Dr. Tisha M. Felder, a Research Assistant Professor at the College of Nursing and Core Faculty on Cancer Prevention and Control Program at the University of South Carolina, and our Black patient experts, Patricia Fox, Tonya Hicks, Aliya Whipple and Joy Jenrette. The panelists focused on what it means to have “Cancer While Black: How Trauma, Fear, Generational Pain & Mistrust Impact Breast Cancer.”
“Cancer while black” is a metaphor for what it means to live while Black in America carrying the historical trauma of systemic and structural racism across generations. Dr. Felder explained the historical trauma that has led to the modern day reckoning of historical and cultural racism in medicine and health care. She shared research studies that described the stark differences between how Black people feel about their reality compared to White perception of daily life as a Black-American. Almost 60% of Blacks feel they are treated less fairly while receiving medical health treatment compared to only 26% of White persons. Dr. Felder went on to share that in her life everything is filtered through race. She is seen first as Black then a scientist.
A striking statistic from Dr. Felder’s presentation was the notion that there wasn’t always a mortality gap between various racial groups of women with breast cancer. The increased mortality rate for Black women occurred while there were numerous advances in breast cancer treatment in the 1980s. Why would the mortality rate increase with medical advances? Black women were and have not received the same care as their White counterparts. The unequal treatment has led to the loss of countless lives. This naturally flowed into the historical generational pain and trauma of oppression. Within the human body, this trauma and pain is stored as allostatic loads (AL). AL is the physiologic burden of chronic stress that can negatively impact health at the cellular or biological levels. Higher levels of AL have been associated with increased risk of cancer specific mortality among Blacks and Whites.
Another topic which resonated with audience members was the “Superwoman Schema”. The strong Black Woman role and its impact on personal stress levels. Dr. Felder urged the medical community to stop asking why Black patients should trust medical/healthcare but why do Black patient’s mistrust medical/healthcare.
Patricia Fox, author of “Declarations Statements of Healing For Women Braving Dis-ease and Tigerlily Angel Recruiter and Outreach Manager, stressed it is important to have no biases for age and race. There is a pathology of not just DNA but a pathology of generational experience that must be explored.
Tonya Hicks, business owner and Angel Advocate, advised patients to know your family history and get genetic testing.
Aliya Whipple, experienced computer operator, Triple-Negative Breast Cancer and BRCA2+ Thriver, recommended personalized care that takes into account the patient’s lived experience. She described her personal experience as not by the book.
Joy Jenrette, an Atlanta-based lawyer, shared the importance of a support system and complete information on understanding the diagnosis.