Clichés of Cancer: Actions Speak Louder Than Words

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Kim writes about moving past a diagnosis and taking action.

When somebody is diagnosed with cancer, you become used to sending an incredible amount of time in clinical settings. It is in those places that we see quotes, words of inspiration and motivational statements that are meant to encourage and push us.

They are meant to give the patient and families that little bit of extra oomph to get us through the hardest of days. It is those same quotes that I call “cancer clichés.” Many may say that it’s a cynical view to have, or that I am bitter because of the situation with my sister. While those statements may hold truth, I simply ask that you read the following article with an open mind.

There is a quote on the wall of The Medical Center of Aurora (TMCA) that sticks out in my mind the most. We have passed it while walking laps on far too many occasions to count. “It is not how many times you fall, but how many times you get back up that matters.” In reality, it is basic math that proves it to be a true statement. If you get up nine times and fall only eight, then you are winning. What has always bothered me about that quote is that it does not explain just how hard it is to actually get back up.

It does not explain the strength and endurance needed or the willingness to stand and fight when every odd is stacked against you — to give just a little more, even when sometimes, it feels like you simply have nothing left to give.

While I’m sure that those words have come to inspire some, they are little more than a cliché to those of us affected by cancer. People never seem to know what to say when they learn about a diagnosis. For my family, people have always offered a solemn, continued prayer. While a wonderful gesture and greatly appreciated, it’s not the action that is required when it comes to dealing or coping with cancer.

We need the masses to stand up and fight. We need everybody to join in helping to get up that 9th time because it is where the strength of a patient comes from. It is the helping hand, that dinner you didn’t expect or a smile that carries you through when you are struggling. It is action, not the text on a wall that empowers those afflicted or affected by cancer. While words have an invaluable effect in this world, there is nothing stronger than action. Because for all the quotes that we read, or sentiments of hope that we hear, it is what we do after hearing or reading it that matters the most.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
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