Male Breast Cancer Is a Wild and Turbulent Ride

Article

Surviving cancer includes balancing the fear of suffering with the prospect of surviving.

Before I found out that I had breast cancer, I worked at Disneyland for a few years. I started out as a high school student carrying passengers up and down Main Street in the old fire engine, and years later returned to work for the company outside the park as a corporate magician.

One of the joys of working there was the chance to enjoy the rides when off duty. Space Mountain, the high-speed roller coaster, was my favorite at the time. It's a head-spinning trip that shoots riders along a track that, for the most part, is in total darkness.

Several warning signs are displayed to would-be riders as they make their way through the line for a chance to be thrilled during those three frightening minutes. They read: ATTENTION: SPACE MOUNTAIN IS A HIGH-SPEED, WILD AND TURBULENT RIDE WITH SUDDEN DROPS…"

It’s not unlike breast cancer.

Those "sudden drops" usually occur in my own life soon after my six-month mammogram is over, as I wait for the results. And those first months after my diagnosis were certainly a period of "total darkness" as I struggled to find my way. I spent long hours sifting through way more information than I could digest.

For many of us with cancer, lots of ideas and opinions run rampant during our early days, and some of the choices we make can literally be life and death decisions. And the truth is, every time we buckle up for a ride on a roller coaster, there is some element of risk, too. When you stop and think about it, each time you drive your car down the highway, you're sitting on top of a highly explosive tank of fuel with only a few inches of hot rubber between you and the asphalt. Life can be risky, and a life with cancer even more so.

Whenever we embark on a dangerous ride, whether it is in our Toyota or on an amusement park roller coaster, we buckle up our seat belt. That gives us a certain sense of security. Cancer offers us opportunities to feel a little safer too.

The first thing I did after my initial diagnosis was to seek out an oncologist who I trusted — literally with my life. I needed to hire someone who listened to my ideas and complaints, and who could compassionately and patiently deal with my own, unique set of fears and phobias.

There are certain parts of my survival regimen that present more anxiety than others. As an example, many people have a fear of needles, and I'm one of them.

So, there's always a substantial degree of discomfort for me (all mental of course) whenever I have a procedure that includes the piercing of my skin by sharp, pointed objects.

Nevertheless, I have been forced to endure a long line of blood tests and surgeries that have included … you guessed it — lots of needling. Every time I walk into Walmart and pass the pharmacy, I know that my flu, shingles and pneumonia shots are waiting for me. I have even mentally chosen the pharmacist that I will allow to administer the agonizing inoculation, but not just yet. I tell myself, "I'll do it next time, I promise."

Fear is a normal human reaction to pain and suffering. A phobia, on the other hand, is an extreme or irrational fear of or aversion to something.

But like that roller coaster ride at Disneyland, I allow myself to be frightened as long as there is a certain amount of trust and safety in the transaction. The odds of dying on that wild and turbulent ride are statistically small, just like the odds of dying from my flu shot.

And those of us with cancer understand odds. As a man with breast cancer, I have a 28 percent increased chance of developing prostate cancer according to the odds makers. So, I endure my fear of needles to get a PSA blood test every couple of years. The lesson I suppose is that all of us have to balance the fear of becoming ill or even dying with the discomfort of testing.

Having said that, I am on my way to Walmart for that flu shot I've been avoiding. And the odds are pretty good that I'll make it this time. www.MaleBreastCancerSurvivor.com

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content