Palliative care at diagnosis

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Yesterday, The New England Journal of Medicine published a study endorsing early palliative care for patients with metastatic lung cancer. The study found that patients who were assigned palliative care at diagnosis had a better quality of life, had less depression, and lived longer (approximately two months) than patients assigned to standard care. Palliative care focuses on creating the best quality of life for patients suffering from symptoms of a disease. This may be by alleviating treatment side effects, such as pain, with medication. It can also be through providing nutritional advice or even spiritual counseling. Palliative care is a holistic approach to caring for a patient's mind and body so that he or she will be in the best possible condition for treatment and to enjoy daily life. So it seems obvious palliative care is available to everyone, right? Not so, says an accompanying editorial to the NEJM study. "Despite the increasing availability of palliative care services in U.S. hospitals and the body of evidence showing the great distress to patients caused by symptoms of illness, the burdens on family caregivers, and the overuse of costly, ineffective therapies during advanced chronic illness, the use of palliative care services by physicians for their patients remains low. Physicians tend to perceive palliative care as the alternative to life-prolonging or curative care--what we do when there is nothing more that we can do--rather than as a simultaneously delivered adjunct to disease-focused treatment," says Amy S. Kelley, MD, and Diane E. Meier, MD, from Mount Sinai School of Medicine. In 2008, CURE featured an article on palliative care that brought to light the importance of this specialty, especially for cancer patients who suffer many side effects of treatment. More and more, we are seeing cancer patients living with metastatic or chronic disease, sometimes waiting for the next greatest therapy and sometimes keeping the cancer at bay with cyclical treatments. With palliative care to help ease their burdens, these patients can continue to enjoy daily life and hopefully be stronger physically and mentally to undergo treatment. Perhaps this is best put by Patty Szostak, a cancer patient who received palliative care and who was interviewed for our story. "I do get scared. But I am able to feel joy. And I still have a mental image of myself at age 90 in my garden with the cats running around, and me pressing seeds into the ground. That's the picture I have. And I'm not giving up on it." That level of hope and joy should be available to all cancer patients.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
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