Productivity loss among parent caregivers associated with poor health-related quality of life in pediatric advanced stage Hodgkin lymphoma.
Caregivers of child and adolescent patients with advanced-stage Hodgkin lymphoma are vulnerable to productiv­ity loss at work, according to phase 3 trial findings.
Researchers defined productivity loss as “a measure of work engagement; spe­cifically, missed time and/or altered per­formance, experienced by parent caregiv­ers of children with cancer.”
The participating caregivers, who were an average age of 43.8 and mostly women, were asked to complete the Caregiver Work Limitations Questionnaire and the Child Health Ratings Inventories- Global Health measure before the start of their children’s therapy.
Researchers explained that the ques­tionnaire quantifies the percentage of time respondents had difficulty perform­ing four key aspects of work because of caregiving: physical, mental-interperson­al and output tasks and time manage­ment. The 10-item inventory measures the child’s health-related quality of life (HRQL), based on the parent’s responses.
Nearly 300 parents completed the two sets of questions; of those, 159 reported working at a paying job and thus were eligible to complete the remainder of the study. All patients were newly diagnosed; most were boys with an average age of 15. The mean HRQL score was 65.2.
Based on the participants’ self-report­ing, researchers determined that care­giving disrupted work tasks at least 31.4 percent of the time. The average amount of disrupted time for mental-interper­sonal tasks, output tasks and time man­agement, as well as productivity loss, was higher in caregivers of children with HRQL scores in the lowest quartile com­pared with caregivers of children with higher scores.
“High productivity losses noted at initial diagnosis indicate that financial hardship begins prior to the start of cancer treat­ment,” the researchers wrote.