Remembering Monica

Article

Monica Knoll

We learned yesterday about the death of Monica Knoll, who founded CANCER101 in 2002.Monica started the organization to help people dealing with breast cancer, but expanded its offerings to cover 23 types of cancer. As a three-time cancer survivor, Monica knew the importance of empowerment. She applied her marketing skills to developing a planner, distributed free at cancer centers in all 50 states, to help patients take control over their disease from diagnosis through follow-up care. Because cancer death rates are nearly three times higher for people without a college education compared with college graduates, Monica was particularly devoted to providing planners to patients and caregivers in underserved populations. Facebook poster Mel Majoros said of Monica: "We have lost a leader in the cancer community." Another poster, Cynthia Zahm Siegfried, said her death was "a terrible loss" but her life was "a wonderful legacy." As tributes are pouring in from around the country, Monica's family has announced a memorial service will be held in July.I met Monica a few years ago at the San Antonio Breast Cancer Symposium. I had always been impressed with the concept of CANCER101 and was so happy to finally meet her. Monica was one of those people who was so full of life that even though she had terminal cancer, you never expected her to succumb to the disease. If only will power was enough.

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content