Shaun Hope's Legacy in Cholangiocarcinoma

Advocacy Groups | <b>Cholangiocarcinoma Foundation</b>

While Shaun was not able to take advantage of research and treatment options, his family's wish is that other families will reap the benefits of their donation and know that they are never alone.

Shaun was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous trademark phrase, “It could be worse.” Shaun was a geek at heart and even while struggling with fatigue and pain, he worked as long as he was able, built an arcade, purchased a 3D printer to construct a home automation system and was always thinking about his next project.

Even on the days he was extremely unwell, he watched his daughters' soccer games, shouting encouragement from the sidelines. He also loved to cook, and many happy hours were spent in the kitchen cooking up amazing meals.

Shaun was happiest when he was with his friends and family. Shaun’s outlook on his diagnosis was an inspiration to all those he encountered with. He made the most of every day and encouraged others to do the same. He truly believed “it could be worse.”

Sadly Shaun passed away in April 2021. Even though he is no longer on this earth, his legacy lives on in those he left behind. Shortly after passing, his youngest daughter, Emily, created a GoFundMe initiative. She made rings in exchange for a donation on Shaun's behalf. By the end of the fundraising, she donated $16,175.00 to the Foundation.

While Shaun was not able to take advantage of research and treatment options, his family's wish is that other families will reap the benefits of their donation and know that they are never alone.

The Foundation joins Shaun Hope’s family in celebrating his life and expresses condolences to the family's loss. Thank you Hope family for this generous donation that will help fund critical CCA research.