The mission of the Cholangiocarcinoma Foundation (CCF) is to find a cure and improve the quality of life for those affected by cholangiocarcinoma, a rare fatal cancer that originates from the cells in the lining of the bile ducts. Founded in 2006 by a family of a loved one who was lost to cholangiocarcinoma, CCF has grown to become a renown, global non-profit organization funding research and providing support and education to the cholangiocarcinoma community at-large.
June 03, 2022
Although she has always been driven to excel, Karen Driskill's, M.S., RN, purpose became more focused after her mother-in-law passed away from intrahepatic cholangiocarcinoma in 2010.
March 08, 2022
Despite several FDA drug approvals over the past few years in the cholangiocarcinoma space, many patients are ineligible for these treatments as a first option, signaling a significant unmet need.
February 16, 2022
Mark R. Clements awards bestowed to three individuals at annual conference, Feb. 23-25th.
January 25, 2022
On behalf of patients and families impacted by cholangiocarcinoma (bile duct cancer), the Cholangiocarcinoma Foundation congratulates AstraZeneca and its positive results from the TOPAZ-1 Phase III trial.
December 21, 2021
The Utah-based organization was recently awarded a credential for volunteer management by the Utah Nonprofit Association.
November 24, 2021
Global day of giving takes place this year on November 30th.
November 05, 2021
Cholangiocarcinoma Foundation volunteer Lourdes Rocha leads the Veterans Program and shares her experience filing claims with the VA in a recorded webinar.
November 02, 2021
While the two men have never met, they have both chosen to join TeamCCF and run marathons while fundraising to benefit the Cholangiocarcinoma Foundation and to show their love to their wives, Mandy Ostrom and Mary O’Meara.
October 13, 2021
Cholangiocarcinoma Foundation launches New Career and Scientific Mentoring Programs by matching mentees and mentors within the ICRN and ENS-CCA networks.
September 29, 2021
Foundation offers free care kits to newly diagnosed cholangiocarcinoma patients and caregivers residing in the U.S.
September 22, 2021
Nonprofit theater company expected to earmark a portion of its proceeds from its Off-Broadway run of ‘Cat on a Hot Tin Roof’ to help with research and advocacy for bile duct cancer.
September 20, 2021
CCF Bidding for the Cure, in partnership with Qtego, features 65 items up for bid to help raise $150,000 for the Foundation’s 15-year anniversary celebration.
September 15, 2021
Newly Diagnosed/New to CCF program gives cholangiocarcinoma patients and caregivers information, resources and support to navigate cancer diagnosis
September 02, 2021
Stacie C. Lindsey is being recognized for her patient advocacy, alignment of research efforts and collaboration among the cancer community.
August 25, 2021
While Shaun was not able to take advantage of research and treatment options, his family's wish is that other families will reap the benefits of their donation and know that they are never alone.
August 23, 2021
The week-long, virtual fundraiser had more than 550 participants from 30 states and 12 countries.
June 29, 2021
Dave Fleischer’s 15,000-mile journey turned out to be more impactful than he anticipated. He traveled nationwide to spread awareness about cholangiocarcinoma, genetic testing and getting second opinions.
August 22, 2020
Could paradigm shifts in cancer research help find a cure for cholangiocarcinoma? Experts discuss.
May 14, 2019
Through community outreach, the Cholangiocarcinoma Foundation aims to increase tumor profiling and clinical trial participation.
February 08, 2019
The Cholangiocarcinoma Foundation has won a grant from Bayer to create a website and outreach to patients and doctors to let them know that all patients with the disease need to have their tumors sequenced, because there are existing medicines and clinical trials that may help patients with actionable mutations more than the standard of care.
February 06, 2019
Targeted drugs and immunotherapies are still on the horizon for people with cholangiocarcinoma, or bile duct cancer.
January 31, 2019
A lot is still unknown about the causes of cholangiocarcinoma, because this type of cancer, which affects the bile ducts inside or outside the liver, is so rare.
April 05, 2018
It's amazing what a new year can bring.
March 31, 2018
Progress in cholangiocarcinoma treatment was long stalled, but now scientists are identifying genetic drivers likely to respond to novel drugs.
August 04, 2017
New therapies are emerging for the treatment of cholangiocarcinoma, a rare type of cancer that is not often discussed.
March 01, 2017
Engaging in different mindfulness techniques can help ease both pain in stress in patients with cancer.
June 07, 2016
CURE Media Group, the nation’s leading digital and print media enterprise focused on cancer patients, has added three colon cancer organizations and one bile duct cancer foundation to its growing Advocacy Spotlight Partnership program. The new partners are Fight Colorectal Cancer, Colon Cancer Alliance, Colon Cancer Coalition and the Cholangiocarcinoma Foundation.
March 28, 2016
Research into treatments for cholangiocarcinoma is branching out, but there are still more questions than answers.
November 24, 2014
Finding specialized care is worth the effort for patients with uncommon cancers.
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