With every heartbeat

Article

There are some Wednesdays when I sit through chemo wishing that I were somewhere else. Today is different. I know that I'm blessed to be here. I'm thankful for the ability to receive this treatment and to buy more time with family. My dreams take me far into the future. It has been a sobering week which makes me even more appreciative of this moment. I've lost two friends and my husband's cousin to cancer. I just heard that Steve Jobs died and another friend is in surgery as I type. He is fighting an infection that has spread to his brain.He had surgery to remove a brain lesion a few weeks ago and has been in rehab since. We talked on the phone yesterday and his stamina and determination warmed my heart. He is regaining the ability to use his hand again and was so happy to be able to actually squeeze it tight! It's a small improvement that in reality is a monumental milestone. We celebrated his accomplishment together, not knowing what the next few hours would hold. After hanging up, I shed tears of joy. Our conversation held emotion that I will never forget, and a friendship with his family that is dear. Hours later, I learned about the infection and his quick need for surgery. I'm thankful now that we had moment to share his triumph, and I am hopeful that soon we will be celebrating another. I also realize had the severity of the infection been known, our joy would have never occurred.So as my treatment drips, I appreciate the mystery that tomorrow holds. It gives me reason to appreciate the gift of now and to be present and grateful. Ronnie and I walked to the lake tonight and watched the clouds as they drifted in soft peaks; amazed at the sight of the setting sun as daylight turned to dusk. I realize every day what being a "breath away from death" has given to me...and am thankful for the hope that is held with every heartbeat. How fortunate I am to share this with a happy, healthy family and a life that is never less than full.May you feel the hope with every heartbeat,

SuzanneSuzanne Lindley has been living with metastatic colorectal cancer since 1998. She is the founder of YES, an organization for individuals living with metastatic liver tumors, and an advocate for C3: Colorectal Cancer Coalition.

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content