Living with metastatic disease during Breast Cancer Awareness Month

Article

Like it or not, October is here.

This month, breast cancer survivors celebrate their successful completion of treatment with fundraisers and programs focused on awareness, prevention and early detection. But for those of us living with metastatic breast cancer, the primary messages of Breast Cancer Awareness Month remind us that we don't get to celebrate the end of treatment.

While we are grateful for the many good drugs to help manage late stage cancer, no drugs can "cure" metastatic disease, therefore we will be in treatment for life.

Up to 30 percent of patients diagnosed with earlier-stage breast cancer will eventually develop stage 4 breast cancer, meaning their cancer will recur and spread (metastasize) to other areas of the body. Almost three years after my initial stage 2 diagnosis, I was diagnosed with metastatic breast cancer to the lungs, liver and bones.

So, in the name of breast cancer awareness, here's a crash-course lesson into the exhausting "Scan, Treat and Repeat" cycle of living with stage 4 breast cancer: In May, a scan revealed that my treatment regimen wasn't keeping my breast cancer under control, which meant it was time to find a new drug. First I tried an IV chemotherapy, but it didn't work. Next, I underwent a barrage of baseline scans to enroll in a clinical trial, except I was rejected when they discovered a small metastasis in my brain. Great...because having advanced cancer while raising an active two-year old isn't enough. All I need is another hurdle to jump. Despite the fact it is fairly common for breast cancer to travel to the brain, some trials reject patients who have ever had brain mets, further reducing the number of treatment options available to me. And somewhere in the scramble to find a new medication, the achy bones and arthritic joints that have become part of daily life morphed into severe, debilitating pain.

My sanity depends on my ability to live life in spite of cancer, but the combination of pain and time spent in the doctor's office was making it impossible to do. I had been refusing radiation in hopes the next drug I tried would work quickly enough to relieve the pain, but when pain prevented me from chasing Henry around or getting a decent night's rest, even I had to say uncle.

After a few weeks of radiation, my pain is gone, I'm slowly regaining my energy, and I have started a new drug with minimal side effects. Gamma Knife radiation worked on my brain mets, but we will likely need to treat another spot or two. Stage 4 can be like a game of whack-a-mole: Zap one area, then another one pops up.

Right now, if only for a few short weeks until my next CT scan, life is good. My two favorite guys and I celebrated the end of our tough summer with a week at the beach, playing in the waves and shutting out the rest of the world. Each day I try my best to stay optimistic and assume my new treatment is working, which means I am able to enjoy the life I'm fighting so hard to hold on to.

Carrie Corey was diagnosed with stage 2 breast cancer at age 29 and with a stage 4 recurrence in 2012 at the age of 31. She is a wife and new mom living in Dallas, and will be reporting frequently on her cancer experiences.

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content