Continuing Care to Those Affected by Cancer's Aftermath

Article

After losing someone to cancer, people may need continued support.

I am lucky enough to say that my sister made it through cancer. I have met many who have not been so lucky. Through this experience, I have met many families who had to say goodbye to loved ones, both young and old, thanks to the illness of cancer.

Each family had their own journey and walked the path just a little bit differently than the others. The common theme that I have found amongst all of these grieving families has been the need for support, not just during the disease process, but also after the loss of a loved one. While I cannot speak to the pain of losing a loved one to cancer, I can attest to the support one receives during and after a bout with cancer.

So many people surround you and do all that they can to ensure that you are OK. When in the hospital, nurses are always around, while doctors frequently ask what they can do. Friends try to seek solutions to make things better and, as a family member, all I wanted was to make life easier for my sister. But now that she is in remission, that isn’t the reality that we live in. I can only imagine how much more difficult that abrupt end to care would have been had we suffered that unimaginable loss.

While there is an understanding that many have come before you and done exactly what you are now doing, it somehow doesn’t make the experience seem any less isolating. As I witnessed families and friends say goodbye to those they love, I noticed that a hole was left by that loss — not just in the sense of heartbreak, but also in a quite tangible sense, too.

Nothing can change the loss or heartache that is sadly being endured. Actions and words may provide a sense of solace or comfort in that moment of need. Sensitivity and assurances that people still care, despite it being “over” still matters. Help those who are grieving to transition to the new normal and help them to know that even though the end did not look as they hoped, that they are not alone.

Just as with the entire process, the needs of a family or individual may be drastically different from one person to the next. If people are feeling anything similar to what I felt after losing my fiancé, they may not even know what they need. That doesn’t mean that doing nothing or staying silent is the right thing to do. Even when words fail us or actions seem inadequate, in the wake of such tragedy, simple humanity is so badly needed.

A transition occurs after losing a loved one to cancer. A couple may go into the hospital, but instead of discharging together, a widow goes home alone. Or a family that was once five is now four after the loss of a young son and brother. That is not a process that anyone should endure alone.

It helps to provide resources and to help them to know that their loved one isn’t just a statistic, but a human. Having witnessed the aftermath of the storm that is cancer, I know that it means so much. Sending words of sympathy after such a loss can often reinforce that the one they loved wasn’t just another patient that passed through an oncology ward.

Life is like a story and sadly, cancer is a chapter for many. Even sadder is that all stories come to an end and in those that contain cancer, it isn’t always a happy ending. But that doesn’t mean that one story matters more than the next, or that some are good while others are bad. What it does mean is that we need to remember that although one story ends, many novellas within that story continue to be written.

Related Videos
For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
Yuliya P.L Linhares, MD, and Josie Montegaard, MSN, AGPCNP-BC, experts on CLL
Image of a man with a beard.
Image of a man with gray facial hair and a navy blue suit with a light orange tie.
Image of a woman with black hair.
Related Content