MDS | Tumor

CURE’s myelodysplastic syndrome (MDS) page is an extensive resource of cancer information featuring the latest myelodysplastic syndrome news, expert oncologist insights on the latest cancer treatments, oncology research, advocacy efforts, and medical data on MDS.

Friends Carry Us Through Cancer and Other Tough Times

January 19th 2023

My family is scattered throughout the country, so I often rely on friends to lend a helping hand.

Imetelstat Hits Transfusion Independence Goal in Low-Risk Myelodysplastic Syndrome

January 6th 2023

Imetelstat improves eight- and 24-week transfusion independence in patients with low-risk myelodysplastic syndrome, according to topline study results.

The COVID-19 Pandemic Goes On and On, and I’m Sick of It

January 6th 2023

As a cancer survivor, the COVID-19 pandemic continues to affect me and force me to miss activities — and people — I love.

Playing ‘Whac-a-Mole’ While Managing GVHD Symptoms After Transplantation

December 28th 2022

One patient describes the management of symptoms of graft-versus-host disease as playing Whac-a-Mole and emphasizes the importance of awareness and education for both patients and their families.

Cancer Centers Contribute to Patients and the Community

December 26th 2022

While the large cancer hospitals do amazing work, I am extremely grateful for my local cancer center.

My Dog Brings Me Joy Amidst Cancer and COVID-19

December 3rd 2022

Despite cancer and the COVID-19 pandemic, my dog helps me find joy in the little things in life.

How Can Cancer Survivors Learn to ‘Let It Be?’

November 17th 2022

As a cancer survivor, I can relate to the lyrics of the Beatles’ song, “Let it Be.”

It’s Tough to Be Vulnerable About Cancer and Other Health Complications

November 3rd 2022

Cancer attacks your body and puts you in a very vulnerable position.

It Helps to Have a Beautiful Center for Cancer Treatments

October 4th 2022

Of course, I want the best cancer care, but I realized that the beauty of the environment where I get it is important too.

NFL Star Shannon Sharpe Shares Prostate Cancer Diagnosis, ‘Good Morning America’ Raises Awareness for Bone Marrow Transplants and More

September 23rd 2022

From NFL Hall of Famer Shannon Sharpe and Monty Python member sharing their cancer diagnoses to “Good Morning America” promoting Be The Match, here’s what’s happening in the cancer space this week.

My New, Side Effect-Free Cancer Treatment Makes Me Feel Like 'a Kid in a Toy Store'

September 14th 2022

My new cancer treatment hardly has any side effects, making me wonder if researchers are focusing on making their drugs more tolerable for patients.

Cancer Survivors Must Bloom Where Planted

September 1st 2022

The last year was tough, but with a new cancer treatment center and other opportunities, I’m going to sit tight and bloom where planted.

FDA Lifts Partial Hold on Blood Cancer Trial, Patient Enrollment Allowed to Continue

August 31st 2022

The FDA’s decision allows patients with relapsed/refractory acute myeloid leukemia or high-risk myelodysplastic syndrome — types of blood cancer — to continue enrolling on the TakeAim Leukemia trial.

FDA Stops Study of Novel Blood Cancer Drug

August 23rd 2022

The Food and Drug Administration put a full clinical hold on a study of the novel drug FHD-286 in patients with acute myelogenous leukemia and myelodysplastic syndrome after study data showed an increase in a potentially fatal side effect.

I’m Still Alive With Cancer, But I Want More

August 17th 2022

Cancer and COVID-19 took away my yearly “benchmarks” of time, when I fly out to see friends and family.

Be Kind to Yourself in Cancer Survivorship

August 10th 2022

I must remember to be kind to myself, and not compare my current abilities to my pre-cancer days.

Trial to Compare Safety and Efficacy of Novel Cell Therapy to Standard of Care in Patients With Rare Blood Cancers

August 3rd 2022

Enrollment has begun on a phase 3 clinical trial assessing the safety and efficacy of an investigational cell therapy in patients with acute myeloid leukemia, acute lymphocytic leukemia and myelodysplastic syndromes.

Novel Drug-Chemotherapy Combo After Stem Cell Transplant Associated With ‘Favorable Survival Outcomes’ in Group of Rare Blood Cancers

July 26th 2022

The findings support future studies of assessing the safety and efficacy of the novel drug-chemotherapy combination as a maintenance strategy following stem cell transplantation across a range of blood cancers, according to the study authors.

I Have the Best of Both Worlds: A Local Cancer Center and a Research Center

July 14th 2022

The decision to be treated locally or at a large research center can be a difficult one, but I am lucky enough to have both.

Cancer Exacerbated My COVID-19 Fatigue

June 14th 2022

I’ve experienced fatigue from cancer before but contracting COVID-19 took it to a whole other level.

My Nurse's Guidance and Compassion Helped Me Survive Myelodysplastic Syndrome

June 1st 2022

The expertise, guidance and overall compassion of Katherine Caprinolo, B.S.N., RN have quite literally helped me survive these past two years.

Having Cancer Makes Me Live on the Edge, Though I Never Asked To

May 20th 2022

Cancer is a dangerous disease that comes with many difficult decisions, making me constantly feel like I’m living on the edge.

While I Appreciate the Concern, Think Before Speaking to Cancer Survivors

April 28th 2022

Well-meaning comments can come off as bothersome — or even hurtful — to me as I navigate cancer.

FDA OKs Continued Enrollment in Ongoing Blood Cancer Clinical Trials After Gilead Addresses Safety Concerns

April 15th 2022

Earlier in the year, clinical trials assessing magrolimab for myelodysplastic syndrome and acute myeloid leukemia were put on a partial clinical hold, but now the FDA said that they can start enrolling patients again.

The Start of 2022 Sucked, But I'm Slowly Getting 'Back in the Race'

April 14th 2022

Early 2022 was difficult for me, with the death of my dog and some difficult cancer-related situations, but thankfully, I know wonderful people who helped pull me out of my slump.

FDA Halts Several Studies Examining Magrolimab-Onureg Combo Across Multiple Cancer Types Due to Serious Side Effects

January 28th 2022

All clinical trials investigating the combination of magrolimab and the chemotherapy Onureg have been paused due to unforeseen serious side effects experienced by patients with various blood cancers receiving the treatment.

mRNA COVID-19 Vaccination Sparks Strong Antibody Response in Patients With AML and MDS

December 13th 2021

Most patients with acute myeloid leukemia and myelodysplastic syndrome achieved strong antibody responses to COVID-19 vaccination, according to recent study results.

There’s Always Hope After an ‘Incurable’ Cancer Diagnosis, Thanks to Devoted Researchers

November 18th 2021

A cancer survivor explains how the new treatments coming out for all types of cancer give her hope. “If we are diagnosed today, a cure or remission may come out next week or next month, or next year to give us additional time to live,” she writes.

Phase 2 Trial Initiated for Second Line Treatment of AML and MDS

November 18th 2021

A phase 2 trial of aspacytarabine (BST-236) was initiated in patients with AML and MDS.

Cancer Survivors Are All on a Journey

September 30th 2021

A cancer survivor explains why each person experiences cancer differently – from side effects to treatments and more.

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