Susan Melvin Hill, patient advocate, discusses how she meets with and helps patients with myeloproliferative neoplasms (MPNs) in Idaho.
Susan Melvin Hill, patient advocate, discusses how she meets with and helps patients with myeloproliferative neoplasms (MPNs) in Idaho. Hill was named one of our 2015 MPN Heroes in the category of Commitment to the Broader MPN Community. Hill's journey began when she transitioned from myelofibrosis patient to dedicated patient advocate. In her dedication to help others with MPNs, Hill established Idaho’s first and only MPN support group. She currently mentors patients with MPNs in several states.
Hill continues to be involved in grassroots awareness activities. These include organizing the annual Rare Disease Day at the Idaho State Capitol, working to include MPN educational materials in the Leukemia & Lymphoma Society’s annual Light the Night Walk, supporting MPN Awareness Day with Governor’s Proclamations, and providing feedback on educational and patient advocacy materials for MPN publications. When she is not supporting MPN activities, Hill somehow finds the time to knit blankets for babies in the neonatal intensive care unit of her local hospital.