2022 RARE Patient Advocacy Summit


2022 RARE Patient Advocacy Summit Rare Life. Bonded Together September 12-14, 2022 San Diego, CA (and virtually!)

2022 RARE Patient Advocacy SummitRare Life. Bonded TogetherSeptember 12-14, 2022San Diego, CA (and virtually!)

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

EBCI would like to encourage you to attend!

They are celebrating being back together again in person but also have opportunities for you to join virtually. Please consider registering for this amazing event! You’ll get two days of connection opportunities, educational sessions, fun, the RARE Champions of Hope Awards Ceremony and even dinner is provided for those who attend in person.

Summit sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home. This year, the

Summit will be in person at the Town & Country Hotel in San Diego, California and, of course, live streamed online in through their virtual event platform.

Town & Country Hotel

500 Hotel Circle North

San Diego, CA 92108 Click HERE to Register!


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