Childhood Cancer Survivorship Programs

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Key Takeaways

Risk-stratified follow-up supports early identification of therapy-related complications, including anthracycline cardiomyopathy, radiation-associated endocrinopathies, and secondary solid tumors or hematologic malignancies.
A national directory facilitates referral to specialized long-term follow-up clinics, improving access to guideline-concordant surveillance for geographically dispersed survivors.
Institution-based survivorship programs integrate late-effects evaluation with multidisciplinary care pathways spanning oncology, cardiology, endocrinology, fertility, neuropsychology, and primary care transition planning.
Listed programs include Children’s Hospital Los Angeles LIFE, City of Hope survivorship services, Yale HEROS, UCLA pediatric LTFU, UCSF Survivors of Childhood Cancer, UChicago Comer Survivors Center, and UT Southwestern/Children’s ACE.

Childhood cancer survivors need long-term surveillance to keep up with late-term effects, screenings, and other health-related issues.

Childhood cancer survivors need lifelong follow-up care to monitor for secondary cancers, long-term and late effects, and other health-related issues. Below are a list of programs that provide survivorship care to childhood cancer survivors.

http://beyondthecure.org/resources/follow-up-clinics.html.

The National Children’s Cancer Society provides a listing of long-term follow-up clinics for survivors of childhood cancer at

Other Childhood Cancer Survivors Programs:

Children’s Hospital Los Angeles LIFE Program (Long-term Information, Follow-Up and Evaluation)

www.childrenshospitalla.org/site/c.ipINKTOAJsG/b.4347877/k.899B/LIFE_Program.htm

City of Hope Childhood Cancer Survivorship Program

www.cityofhope.org/survivorship

HEROS Clinic at Yale Cancer Center

www.med.yale.edu/pediat/hem_onc/heros/index.html

UCLA’s Jonsson Comprehensive Cancer Center Pediatric Long-Term Follow-Up Program

www.cancer.ucla.edu/Index.aspx?page=222

UCSF Survivors of Childhood Cancer Program