AAMDS Upcoming Events

Advocacy Groups | <b>Aplastic Anemia and MDS International Foundation</b>

Learn more about upcoming events from the Aplastic Anemia and MDS International Foundation.

Thursday, September 9th, 2021: Webinar: Advances in PNH

Eloy Roman, MD, PA with Lakes Research will discuss the recent advances in treating PNH including drugs recently approved as well as what's in the pipeline. This session is ideal for PNH patients, family members, and caregivers.

This session will also include a live Q & A session.You are invited to submit your questions in advance to help@aamds.org.

Please register here: https://www.aamds.org/webinar/advances-treating-pnh

Saturday, September 11th, 2021: Fall Virtual Conference

8:30am to 3:00pm EDT

AAMDSIF hosts Patient & Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.

Sessions are available for

• Aplastic Anemia Patients

• PNH Patients

• MDS/AML Patients

• Transplant Patients

• Pediatric Families

For more information and to register, please follow this link:

https://aamdsif.salsalabs.org/fall2021virtualpatientfamilyconference/index.html

Monday, September 13th, 2021: Webinar

3:00 PM EDT - 4:00 PM EDT

MDS/MPN overlap syndromes have long been difficult to define and diagnose since they were discovered. They have similar features, symptoms and test results to other myeloid neoplasms like MDS and MPN which makes it hard to diagnose. By using next generation sequencing, hematologists/oncologists are able to better understand these syndromes and plan a course of treatment that is more effective and has better outcomes.

Dr. Hunter will review changes in understanding clinicians and researchers have about diagnosing and treating these overlapping syndromes (including chronic myelomonocytic leukemia, juvenile myelomonocytic leukemia, atypical chronic myeloid leukemia, MDS/MPN with ring sideroblasts and thrombocytosis and MDS/MPN unclassifiable). This session will also include a live Q & A session. You are invited to submit your questions in advance to help@aamds.org.

Please register here: https://www.aamds.org/webinar/molecular-genetics-mdsmpn-overlap-syndromes

Wednesday, September 15th, 2021: Webinar: Cardiac Complications with Bone Marrow Transplant

1:00 PM EDT - 2:00 PM EDT

This webinar is suitable for patients, families and caregivers who are considering transplant as a curative option for their bone marrow failure disease or those who have already undergone transplant.

Dr. Yang will discuss the cardiac complications that can occur post-transplant and what pre-transplant diagnostic tests should be conducted and what the transplant team can do post-transplant to manage cardiac health.

This session will also include a live Q & A session. You are invited to submit your questions in advance to help@aamds.org.

Please register here: https://www.aamds.org/webinar/cardiac-complications-bone-marrow-transplant