Finding courage beneath the sword

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Tonight has been tough...with uncertainty and reality that I rarely let sneak into my life. Another friend has gained his wings. Katherine is in the final days, if not hours before receiving hers, and too many friends have slipped from earth into heaven these past few months. I think of Tony Snow and his wise words to me, "...we will move on, leaving behind people we love dearly, and whom we would spare the pain of bereavement if we could. But we also know that God and a whole lot of our friends and loved ones are on the other side, waiting eagerly to welcome us home." I breathe deep and grasp these words for courage, finding a whisper of comfort.Yet the Sword of Damocles' hangs over head. Destruction is only a hair's breadth away and even as the beauty of family surrounds me, I know that the sword remains. Thurgood Marshall once wrote, "That the value of a sword of Damocles is that it hangs - not that it drops." It is a reality that sobers, but perhaps is no different for the next healthy person than it is for me.I searched for answers of how to defy the threat of the sword. Tomorrow, I receive another chemo treatment and scramble to show gratitude. I remind myself that I am thankful that I'm still here to experience another treatment. Grateful that I've held my family close, that I am surrounded by wonderful friends, that we've lived dreams that many never see, that I've enjoyed special times with my girls, and the fortune that every day is a rocking chair day with Ronnie. My life is rich every night, but especially so tonight. That's all that any of us have. This breath. This heartbeat. The miracle of this moment gives strength to the strand of hair that holds my fate. Even beneath the sword; faith, hope, and love remain.

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For patients with cancer, the ongoing chemotherapy shortage may cause some anxiety as they wonder how they will receive their drugs. However, measuring drugs “down to the minutiae of the milligrams” helped patients receive the drugs they needed, said Alison Tray. Tray is an advanced oncology certified nurse practitioner and current vice president of ambulatory operations at Rutgers Cancer Institute in New Jersey.  If patients are concerned about getting their cancer drugs, Tray noted that having “an open conversation” between patients and providers is key.  “As a provider and a nurse myself, having that conversation, that reassurance and sharing the information is a two-way conversation,” she said. “So just knowing that we're taking care of you, we're going to make sure that you receive the care that you need is the key takeaway.” In June 2023, many patients were unable to receive certain chemotherapy drugs, such as carboplatin and cisplatin because of an ongoing shortage. By October 2023, experts saw an improvement, although the “ongoing crisis” remained.  READ MORE: Patients With Lung Cancer Face Unmet Needs During Drug Shortages “We’re really proud of the work that we could do and achieve that through a critical drug shortage,” Tray said. “None of our patients missed a dose of chemotherapy and we were able to provide that for them.” Tray sat down with CURE® during the 49th Annual Oncology Nursing Society Annual Congress to discuss the ongoing chemo shortage and how patients and care teams approached these challenges. Transcript: Particularly at Hartford HealthCare, when we established this infrastructure, our goal was to make sure that every patient would get the treatment that they need and require, utilizing the data that we have from ASCO guidelines to ensure that we're getting the optimal high-quality standard of care in a timely fashion that we didn't have to delay therapies. So, we were able to do that by going down to the minutiae of the milligrams on hand, particularly when we had a lot of critical drug shortages. So it was really creating that process to really ensure that every patient would get the treatment that they needed. For more news on cancer updates, research and education, don’t forget to subscribe to CURE®’s newsletters here.
Yuliya P.L Linhares, MD, an expert on CLL
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