Cancer Support Community

Brian d'Arcy James of Netflix’s series 

 is set to take on the 26.2-mile-long challenge of the 2017 Bank of America Chicago Marathon on October 8

 and raise money to support cancer patients and their loved ones served by the 

“Like most everyone, my life is touched by cancer. My father Tom James died of cancer at age 50 and my cousin Tom is currently fighting cancer,” said James. “This is why my brother Andrew and I are running the Chicago Marathon under the banner of 

 to benefit the Cancer Support Community. What makes CSC so wonderful to me is the wide approach they take to not only support patients who are dealing with diagnoses, but also the friends and family around them who are as well.”

“We were very heartened when Brian and Andrew reached out and said they want to run the Chicago Marathon to benefit the Cancer Support Community in honor of their father and cousin,” said Kim Thiboldeaux, CEO of CSC. “We wish Brian and Andrew the best of luck and we will loudly cheer on TEAM TOM on race day!”

 anniversary of the Chicago Marathon. Chicago is one of the biggest marathons in the world, attracting tens of thousands of runners to the race to raise money for different charities. 

All funds raised by James will benefit the Cancer Support Community!

Articles

Brian d'Arcy James of 13 Reasons Why, Spotlight, and Hamilton is set to take on the 2017 Bank of America Chicago Marathon and raise money to support cancer patients and their loved ones served by the Cancer Support Community.

Brian d'Arcy James Runs the Chicago Marathon to Raise Money for the Cancer Support Community

 (July 18, 2017)—The Cancer Support Community (CSC), an international nonprofit organization, today released a research report that that found the scarcity of communication between patients and their care team about cost-of-care results in financial toxicity for patients living with cancer. In addition, nearly half (47 percent) of patients are identified as at risk for clinically significant levels of depression. 

93 percent of patients said quality of life is a very important factor when weighing treatment options

73 percent of patients reported not discussing the cost of care with their care team

43 percent of patients noted lack of transportation as an obstacle stopping them from participating in a clinical trial

30 percent of patients surveyed said they depleted their savings because of treatment costs

published by CSC’s Research and Training Institute using its repository of clinical data from the Cancer Experience Registry that includes over 12,000 patients and caregivers of 45 cancer types. 

Insight into the Patient Experience: Cancer Experience Registry Report 2017

“Traditional big data helps us personalize treatment, but when you do not account for the patient’s attitudes, beliefs, and behaviors it can derail the entire treatment plan leading to poor quality of care and patient outcomes,” said Linda House, RN, BSN, MSM, President of CSC.

The Registry found that patients’ adherence to treatment is poorer when emotional distress and financial burden are high. Specifically,

patients experiencing financial burden and at high risk for depression were significantly more likely to have suboptimal adherence than patients experiencing only financial burden.

“This report will help the patient and their care team identify areas where they can communicate better on,” Joanne Buzaglo, Ph.D., Senior Vice President of Research and Training of CSC. “Furthermore, the tremendous growth of the Registry, demonstrate the need from patients and caregivers wanting to connect and share their cancer experience.”  

“Knowing that I am not alone in my cancer experience has been one of the things that keep me encouraged and motivated,” said LaKeesha Murray, a cancer survivor. “Through the Cancer Experience Registry, I can make a difference by sharing my story and helping shape new programs for those at CSC of Greater Philadelphia and worldwide, while advancing research for myself and others living with Cancer.”

report, CSC is releasing data from 10 Specialty Registries to identify the unique challenges of each cancer diagnosis including patients with breast cancer, chronic lymphocytic leukemia, chronic myeloid leukemia, lung cancer, melanoma, metastatic breast cancer, multiple myeloma, prostate cancer, and stomach (gastric and gastro-esophageal) cancer, as well as caregivers.

Featured speakers at the report release include: 

 Yousuf Zafar, MD, MHS, Associate Professor of Medicine and Public Policy Duke Cancer Institute

Craig E. Cole, MD, Assistant Professor, University of Michigan

Member of the Cancer Support Community of Greater Philadelphia 

Follow the conversation on social media by using the hashtag #CancerInsights.

Insight into the Patient Experience: Cancer Experience Registry Report 2017,

www.cancersupportcommunity.org/RegistryIndexReport2017

Watch the release live starting at 2 p.m. ET: 

https://www.facebook.com/CancerSupportCommunity

CSC to release seminal research on the emotional, social, and financial burden on cancer patients


Author | Cancer Support Community

Brian d'Arcy James Runs the Chicago Marathon to Raise Money for the Cancer Support Community

Persisting Gaps in Cancer Care Affect Patient Outcomes