Video

Knowledge Is Key in Patient Advocacy

Understanding the disease and treatments are key aspects of being a patient advocate, explained MPN Hero Marcy Worthington.

In order to be their own advocates, patients should know about their disease and their treatment options, explained Marcy Worthington, a patient advocate. Patients must also realize that treatment is not a one-size-fits-all approach, and just because something works for one person, it might not work for someone else.

Worthington was diagnosed with polycythemia vera in 2002, and became a list owner of MPN-NET, the MPN Education Foundation’s online support group. She was also recently honored by CURE as a 2018 MPN Hero.

Newsletter

Stay up to date on cancer updates, research and education

Related Videos
Daniel Jernazian, who beat cancer twice, credits his sports mindset for survival and calls it winning his ‘life World Championship’.
Patients in rural or underserved areas may have worse outcomes, highlighting the need for early support to address care access barriers.
Image of man with text.
Dr. Emre Yekedüz discusses how ASCO 2025 highlights precision medicine, biomarkers and the gut microbiome as keys to advancing kidney cancer care.
Dr. Breelyn Wilky stresses the importance of expert guidance and second opinions for patients with GIST, as treatment options continue to evolve rapidly.
Mark Daniels, 83, credits CAR T-cell therapy and compassionate care for helping him overcome lymphoma and endure the isolating treatment toll.
An early study of BGB-16673 for hard-to-treat leukemia found that side effects were manageable with no new safety concerns.
Image of woman with text.
Image of goy, and text.
Watch oncology dietitian Kenisha Parikh prepare creamy lentil soup, a soothing, protein-packed recipe to help ease side effects during treatment.
Related Content