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Cure Media Group, LLC.
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P: 800-210-2873

Copyright © 2018
CURE Media Group.
All rights reserved.
Cure Media Group, LLC. All Rights Reserved.
CURE does not provide medical, diagnostic, or treatment advice.
MPN Heroes
Honoring Those Who Have Made Our World A Better Place

CURE® magazine is proud to host an annual evening of gratitude and celebration for the heroes that are making differences in the lives of people with myeloproliferative neoplasms (MPNs).

Each MPN Hero is nominated by patients and caregivers for their heroic contributions in the field of MPNs or in the individual lives of people with MPNs.

Read about this year’s event and explore the tabs at the top of this page to learn more.

For more information on MPN awareness, please also see www.voicesofmpn.com. 
 

  • highlights
 

     

 

Jill Biden
Jill Biden, Ed.D., Co-Chair

Dr. Jill Biden is a mother and grandmother, a lifelong educator, and was Second Lady of the United States from 2009 - 2017.

Dr. Biden's passion for the fight against cancer began in 1993, when four of her friends were diagnosed with breast cancer. Hoping to use her decades-long education background to promote prevention, she started the Biden Breast Health Initiative in Delaware, which has educated more than 10,000 high school girls about the importance of early detection of breast cancer.

Later, after losing both parents to cancer, and helping to nurse her sister through a stem cell transplant, she was inspired to use her role as Second Lady to raise awareness and support research. In Washington, D.C., Dr. Biden and the Vice President served – and continue to serve – as the Honorary Co-Chairs for the Global Race for the Cure.

Following the death of their son Beau to brain cancer in 2015, Vice President and Dr. Biden helped push for a national commitment to ending cancer, known as the White House Cancer Moonshot. Today, they continue that mission through the Biden Cancer Initiative, with the goal to inject a sense of urgency into cancer research and care, and to deliver better outcomes for patients. The Biden Cancer Initiative is guided by a Board of Directors, co-chaired by Vice President Joe Biden and Dr. Jill Biden, which includes world-renowned leaders and experts in the fields of medical research, patient care, information technology, finance, management, patient engagement, patient experience, and public policy. The Initiative’s vision is to be a major convening force in driving new actions and collaborations toward ending cancer as we know it.

In addition to her work in the area of cancer, Dr. Biden works as a full-time English professor at Northern Virginia Community College – a position she held throughout her time in the White House. She also co-chairs the America College Promise National Advisory Board – leading the effort to make community colleges free for responsible students – and serves as the Board Chair of Save the Children US.

With the conclusion of the Obama-Biden Administration, Dr. Biden and the Vice President launched the Biden Foundation in 2017, to continue their work to strengthen the middle class, protect women and children against violence, advocate for community colleges, and support military families.

Heroes Category: Commitment to the Individual
 
 
Barbara Abernathy, PhD
 

When Barbara earned her PhD and began counseling families of young patients with serious illnesses, she never anticipated that she’d face her own serious diagnosis: polycythemia vera (PV). Today, Barbara draws on her own 20+-year journey with cancer to offer a uniquely compassionate perspective to both the families she counsels as executive director of the nonprofit Pediatric Oncology Support Team in West Palm Beach, Florida, as well as the MPN patients who reach out to her for support.

Barbara is known for her tireless devotion to the MPN community—whether it’s sharing her own experience to help ease the anxiety of an MPN diagnosis, helping families navigate their way to services and other support they need, or speaking to senators and congressional representatives about the challenges and needs of MPN patients. She has also been a long-time volunteer for the Leukemia and Lymphoma Society, where she recently served as a regional board member. Aside from supporting individual patients, Barbara strives to raise awareness about MPNs and to promote more funding for treatment research, which she credits for saving her own life.

Despite considerable challenges over the years, including diagnoses of myelofibrosis and leukemia and a bone marrow transplant in 2013, Barbara forges on in being a much-admired advocate for the MPN community.

 
 
 
 
Mark Heaney, MD, PhD
 

Dr. Mark Heaney has devoted more than 20 years to conducting research toward better MPN treatments and to serving patients who are living with them.

He's led and participated in many impactful lab research studies and more than 20 clinical trials focused on MPNs and other rare blood cancers. He’s also known as a compassionate and generous physician to the more than 100 MPN patients he cares for.

In addition to his years of dedication to patient care and research, Dr. Heaney has actively pushed to raise awareness of MPNs through education and advocacy—especially through his work with Patient Power® and the Leukemia and Lymphoma Society—where he’s brought patients, physicians, and researchers together to learn from each other.

 
 
 
Susan Leclair, PhD, CLS (NCA)
 

Dr. Susan Leclair is well-known throughout the MPN community, especially for her approachability and down-to-earth explanations for MPN patients around the world who are puzzled by the technicalities of their conditions and test results.

Dr. Leclair makes herself accessible “live” on a number of list serves including MPN Net, where patients and caregivers can ask questions and get personalized answers via email about the meaning and significance of their lab report data—a service praised by patients near and far. She has also been a spirited speaker at many conferences and symposia over the years, has served on countless panels, and has been featured in Patient Power® and MPN Education Foundation educational videos.

Now retired from University of Massachusetts Dartmouth, Dr. Leclair spent more than 40 years as a clinical lab professional, focused on hematology, oncology, genetics, and bioethics. As a lab sciences professor for both medical and non-science majors, she also honed her unique ability to clearly explain technical scientific concepts using simple language, analogies, and illustrations that everyone can understand.

 
 
 
Lindsey Lyle, MS, PA-C
 

From the time she was 8 years old, Physician Assistant Lindsey Lyle knew she wanted to work in medicine. Following a traumatic childhood bicycle accident, she’d spent a lot of time under the care of physician assistants, among others, who inspired her. During her medical school rotations, she gravitated towards caring for patients with MPNs and other blood cancers.

Lindsey started her career working closely with a physician devoted to MPNs at University of Texas, MD Anderson Cancer Center. Seeing an unfilled need, she became passionate about educating both patients and medical providers about MPNs. Since returning to her home state of Colorado, Lindsey’s commitment to the MPN community has grown even stronger. She’s collaborating to build an MPN program at University of Colorado and is highly regarded among her patients and colleagues for her exceptional knowledge of MPNs, her individualized attention to each patient’s needs, and her enduring commitment to MPN education.

On that front, Lindsey has been a panelist in several videos and webinars for Patient Power® and University of Colorado. She’s also served as chair and moderator of roundtable discussions hosted by JADPRO (Journal of the Advanced Practitioner in Oncology) and currently serves as its MPN Updates editor.

 
 
Heroes Category: Commitment to the Broader MPN Community
 
 
Gabriella Hobbs, MD
 

Dr. Gabriela Hobbs is a rising young star in the field of MPNs, known for both her “leave no stone unturned” dedication to caring for patients as well as her promising and impactful clinical research.

In 2014, Dr. Hobbs established a dedicated MPN center at Massachusetts General Hospital in Boston, bringing these conditions to the forefront of the hematologic malignancy program and raising awareness about the need for more research. She’s developed several clinical trials focused on MPNs, and she also collaborates with other major US cancer centers toward better understanding the mechanisms that lead to MPNs and their progression.

In the office, Dr. Hobbs is known for her compassionate and holistic approach to patient care, with treatment modalities that include lifestyle modification, stress reduction, and exercise to help improve her patients’ overall health in addition to their MPN conditions. Outside of the office, Dr. Hobbs is active in patient education, often organizing patient information meetings in the Boston area, performing community outreach, and educating community healthcare providers about MPNs to bring greater awareness to these rare conditions.

 
 
 
Catriona Jamieson, MD, PhD
 

Dr. Catriona Jamieson and her team at University of California – San Diego Cancer Center have been making headlines in recent years for their groundbreaking research into cancer stem cells. Dr. Jamieson’s goal is to find more selective, less toxic therapies for MPNs and other blood cancers.

By using blood samples to study the DNA and RNA of patients with MPNs, Jamieson has focused on finding out how MPNs might start and what makes some cases progress. In the process, she and her team learned that errors in RNA appear to play a key role, driven by an editing enzyme called ADAR1. Dr. Jamieson’s team is now working on potential treatments that could “dial down” ADAR1 activity and hopefully turn off the mechanism that lets cancer cells make more copies of themselves. They’re also researching potential diagnostic tests that could detect ADAR1 activity, allowing physicians to target therapy against ADAR1 based on individual patient data. In the future, Dr. Jamieson foresees that ADAR1-focused diagnositics and treatments could allow for personalization of therapy, allowing for targeted treatments that could be optimally timed based on test results. Dr. Jamieson’s mission is to translate her lab research to the clinic as quickly as possible to make that a reality for MPN patients.

In the meantime, Dr. Jamieson works to help patients understand the latest MPN research findings, by speaking at events and creating informative videos for Patient Power® and the MPN Research Foundation.

 
 
 
Julie R. Libon, Patient Advocate
 

When Julie was diagnosed with myelofibrosis (MF) in 2014, she felt her mission was clear: to organize an event that could raise funds toward researching a cure. In 2015, she and her sister organized the first HikeMF, a 3-mile walk through the woods in suburban Boston, which they hoped might attract a couple dozen people and a little money for the MPN Research Foundation. They chose a hike as a way to pay tribute to a favorite family pastime they’d adopted as children. Julie was thrilled when 125 hikers turned out and together raised more than $25,000 for the cause that first year.

Since then the annual hike has gained even more participants, raising nearly $45,000 for MPN research this past year and spreading to other regions. Julie has helped people in other states organize local fundraising events, and she’s attracted followers around the globe who also hike on the designated HikeMF day.

Julie’s contributions to the MPN community don’t stop there. She helped organize the MPN Support Network, an online referral souce for MPN patients. And she’s active in MPN social media as well, serving as an administrator for the MPN Forum’s Facebook page.

 

 
 
 
 
Carole Brennan Miller, MD
 

Dr. Carole Miller has a passion for cancer research and for community service, and she’s made profound contributions to both over her long career.

As director of the award-winning Cancer Institute at St. Agnes Hospital in Baltimore, Maryland, Dr. Miller has grown their community-based research program over the past 15 years to include more than 30 ongoing clinical trials, particularly around blood cancers. Many of these trials have led to important breakthroughs and provide hope to many MPN patients faced with advancing disease and dwindling options. Patients from the area and across the country seek her care and expertise. Dr. Miller is particularly proud of her early work at Johns Hopkins University on a revolutionary drug that is now widely used to treat chronic myelogenous leukemia (CML). That work also shed light on the molecular changes that lead to malignancy and laid the foundation for targeted therapies that are a primary focus of current MPN research.

Dr. Miller is a nationally known expert on blood cancers, as well as a renowned community health advocate. She founded the Baltimore Blood Club, which brings together community and academic physicians to discuss clinical trials, difficult patient cases, and new treatment options with the broader goal of elevating patient care. She’s also worked with the American Society of Hematology, the Association of Community Cancer Centers, the Leukemia and Lymphoma Society, and other organizations to educate community physicians and patients about MPNs and other blood cancers and to raise awareness about them.

 
 
#mpn-2016-heros#
2016 4th Annual MPN Heroes™ Recognition Gala Photos
 
All photos credited to Emilio Azevedo.
#mpn-2015#
2015 3rd Annual MPN Heroes™ Recognition Gala Media
 
 
 
 
 


2014 2nd Annual MPN Heroes™ Recognition Gala Photos
 
 
2016 4th Annual MPN Heroes™ Recognition Gala Special Guest Speaker

Dr. Mukherjee’s new book The Gene: An Intimate History, debuted at #1 on the New York Times bestseller list. It is a magnificent history of the gene and a response to the defining question of the future: What becomes of being human when we learn to “read” and “write” our own genetic information?

A cancer specialist, Sid has devoted his life to caring for victims of cancer, a disease that sickens and kills millions of people around the world each year. As a researcher, his laboratory is on the forefront of discovering new cancer drugs using innovative biological methods.

Dr. Mukherjee is equally devoted to and effective in communicating the “story” of cancer through his writings. In his engrossing book, The Emperor of All Maladies: A Biography of Cancer, Dr. Mukherjee gives readers a fascinating look into the origins and causes of cancer, its deadly effect on the human body, how it has virtually enveloped modern civilization, and the epic battles that are taking place to control, cure, and conquer it. As he notes, the disease now touches in some way the lives of every man, woman and child in the world, while scientists and physicians work tirelessly to bring new treatments and hope to its victims.

Dr. Mukherjee has been published in Nature, New England Journal of Medicine, Neuron, Journal of Clinical Investigation, The New York Times, and The New Republic. His work was nominated for inclusion in Best American Science Writing, 2000.

Sid is an accomplished speaker. His words both on the stage and on the page are powerful, illuminating, and inspiring.

 

2015 3rd Annual MPN Heroes™ Recognition Gala Special Guest Speaker

Dr. Jennifer Arnold, co-star of “The Little Couple” and a neonatologist at Texas Children’s Hospital, will be the guest speaker at CURE® magazine’s 3rd Annual MPN Heroes™ recognition event on Friday, Dec. 4, prior to the annual meeting of hematologists.

Dr. Arnold stands at just 3 foot 2 inches and has a rare type of dwarfism called Spondyloepiphyseal Dysplasia Type Strudwick, for which she has undergone more than 30 surgeries. TLC's docudrama, “The Little Couple,” follows the personal and professional lives of Dr. Arnold, her husband Bill and their two children, Will and Zoey. Dr. Arnold also has been involved in healthcare simulation education for the last eight years and is now the medical director of a state-of-the-art simulation center at Texas Children’s Hospital, where she is a practicing physician at the largest NICU in the country.

In December 2013, Dr. Arnold revealed she had cancer, a rare type of cancer stemming from an abnormal pregnancy: gestational trophoblastic neoplasm.  She underwent surgery in addition to chemotherapy for 3 months before going into remission. Dr. Arnold will share her experiences and talk about the importance of a supportive community for those afflicted with a rare disease. She, like the people with MPNs, understands the loneliness of having a rare disease, with few like people to talk with and limited treatment options.

 

2014 2nd Annual MPN Heroes™ Recognition Gala Special Guest Speaker

At the 2014 MPN Heroes Recognition Gala, CURE was pleased to have actor and advocate Chip Esten as the event's special guest speaker.

Chip Esten


Born in Pittsburgh, PA, Charles "Chip" Esten was raised in Alexandria, VA and attended T.C. Williams High School (made famous in the film “Remember the Titans.”) He then attended The College of William and Mary in Williamsburg, where he graduated with a degree in economics and met his eventual wife, Patty. While in Williamsburg, he was lead singer/songwriter in a popular local band.

Esten made his theatrical debut in London when he portrayed Buddy Holly, singing, acting and playing guitar in the hit West End musical “Buddy.” In that role he was honored to perform for H.R.M Queen Elizabeth and Prince Philip, and eventually President and Mrs. George H.W. Bush at The White House. He was also very honored to perform with Jerry Allison and Joe B. Mauldin, Buddy’s original hitmaking bandmates, the Crickets.

It was during his run as Buddy that Esten first appeared on the original British version of “Whose Line Is It Anyway?,” with Ryan Stiles and Greg Proops. When “Whose Line” came to ABC, he became a recurring cast member and frequent song improvisor. Since then he has appeared on Drew Carey’s Improvaganza and toured frequently, performing live improv shows with Stiles, Proops and Jeff B. Davis.

Esten’s many additional television credits include recurring roles on “Big Love,” “Enlightened,” “The Office” and “ER.” Besides being the father on Disney Channel’s “Jessie,” he has been a Klingon on “Star Trek: The Next Generation,” a secretary on “Murphy Brown” and Kelly Bundy’s fiance on the series finale of “Married with Children.” His film credits include “Swing Vote,” “Thirteen Days,” “61*” and “The Postman.”

While on "Nashville”, Esten has been honored to perform at the Grand Ole Opry and the historic Ryman auditorium. He was also honored to officially "flip the switch" at the 2013 Graceland Christmas Lighting ceremony. Many of the songs he has performed as Deacon (Undermine, Sideshow, Playin' Tricks, etc..) are available on the three very successful "Nashville" soundtracks that have been released to date.

Over a decade ago, Esten’s life was turned upside down when his then 2 1/2-year-old daughter, Addie, was diagnosed with acute lymphoblastic leukemia, a cancer that affects the body's white blood cells. The disease, which is generally highly treatable in children, was detected after Esten and his wife, Patty brought Addie to the pediatrician for a small rash of red spots. Addie underwent weekly spinal taps and a grueling two-year course of chemotherapy. She also participated in several clinical trials, which rendered her unable to walk for six months and forced her into intensive care. With his daughter now 14 and in remission Esten and his family have dedicated themselves to helping other families of sick children with blood cancers.

Click here to hear more from Esten as he recounts his daughter's cancer diagnosis and recovery at the Leukemia and Lymphoma Society's Light The Night Walk kick-off lunch.

 

 

 
CURE® Magazine Hosts 4th Annual Gala Honoring MPN Heroes®
 
Celebration recognizes patient advocates, clinicians, researchers and caregivers for their dedication to improving the lives of people with rare blood cancers.
 
SAN DIEGO, CALIF. (PRWEB) DECEMBER 02, 2016

On Dec. 2, 2016, CURE® magazine will host the 4th Annual MPN Heroes® Recognition Event at the Hard Rock Hotel San Diego honoring the 2016 MPN Heroes—eight individuals who have made a difference in the field of rare blood cancers known as myeloproliferative neoplasms (MPNs) by going above and beyond the standard of care, demonstrating leadership within the MPN community and/or a commitment to individual patients.

This year’s event, being held prior to the 58th American Society of Hematology Annual Meeting, will recognize Ross Levine, MD; Elliott Winton, MD; Erin Blackwell, RN, BSN, OCN; Bonnie Blankert; David Wallace; Ann Brazeau; Andrew Schorr; and Patricia Koenig. Joining the honorees as keynote speaker is cancer researcher and Pulitzer Prize-winning writer Siddhartha Mukherjee, MD, PhD.

“We celebrate these real-life heroes who work every day helping patients and families. Honoring these outstanding caregivers and advocates reflects our dedication to the cancer community,” said CURE Media Group President Michael J. Hennessy, Jr.

The MPN Heroes® Recognition Event is made possible with support from Incyte Corporation, CancerCare, Cancer Support Community, the Leukemia & Lymphoma Society, MPN Advocacy & Education International, the MPN Education Foundation, the MPN Research Foundation and the National Organization for Rare Disorders. A steering committee of patients, advocates and health care professionals selected honorees from among the scores of people and groups nominated by the MPN community. This year’s award recipients include two physicians, a nurse, a caregiver and four patient advocates. Of these, four awards are going to individuals in the category “Commitment to the Individual”: 

  • Ross Levine, MD—Dr. Levine has had an enormous impact on MPN research. His many innovative contributions include the co-discovery of a key gene mutation, being the development lead in important clinical research and development of drug treatment approaches to clinical trials for MPNs.
  • Elliott Winton, MD—Dr. Winton is a distinguished researcher who conducted the first bone marrow transplant at Emory University Hospital in 1979. In addition to advancing the science of MPNs through continuous research, he’s an esteemed physician who spends endless hours talking with patients at Cancer Support Community, national MPN organizations and local MPN support groups.
  • Erin Blackwell, RN, BSN, OCN—Erin is renowned for her compassion and exceptional dedication to her MPN patients at the Levine Cancer Institute. She excels at personalized patient care, can recall details about most of her patients and gets back in touch with patients—even during her off-hours.
  • Bonnie Blankert, Caregiver—Bonnie left her home and family for 2 months to care for a friend who needed stem cell transplant surgery due to complications of post-essential thrombocythemia myelofibrosis. Without a designated caretaker, her friend would not have been eligible to have the transplant surgery.

 

The second category of recipients includes individuals whose continuous efforts have had a significant impact on the broader MPN community: 

  • David Wallace, Patient Advocate—David publishes PV Reporter and MPN Cancer Connection, informative websites for patients with MPNs. Diagnosed with polycythemia vera (PV), David is devoted to helping other patients get information and resources to help them live with their MPNs.
  • Andrew Schorr, Patient Advocate—Andrew’s experiences with chronic lymphocytic leukemia and myelofibrosis inspired him to found Patient Power and Patient Empowerment Network, well‐regarded online portals offering authoritative cancer information. Andrew travels widely to interview top MPN experts and also reaches out to patients in MPN support groups, offering knowledge to help them become more empowered and informed.
  • Ann Brazeau, Patient Advocate—Ann is the founder and CEO of MPN Advocacy & Education International. Her devotion to grassroots education and services for the MPN community has made her a legendary patient advocate—especially for underserved populations.
  • Patricia Koenig, Patient Advocate—Patricia’s cheerfulness and inner strength encourage others who live with PV. Patients may be searching for hope after they are diagnosed with PV, and they find it when they meet Patricia and hear her story of courage.

 

In an effort to honor the four Heroes recognized for their impact on the broader MPN community and further increase awareness, Incyte will make a $25,000 charitable donation per recipient to an organization engaged in MPN activities.

Keynote speaker Siddhartha Mukherjee, MD, PhD, will join the hundreds of guests honoring the 2016 MPN Heroes® and share new insights into the causes and cures of cancer. A graduate of Stanford University, Harvard Medical School and Oxford University, Dr. Mukherjee is a cancer specialist whose laboratory is at the forefront of discovering new cancer drugs using innovative biological methods. In his Pulitzer Prize-winning book, The Emperor of All Maladies: A Biography of Cancer, Dr. Mukherjee explores the origins and causes of cancer, its deadly effect on the human body, how it has virtually enveloped modern civilization, and the epic battles that are taking place to control, cure, and conquer it.

“Incyte Corporation is pleased to once again partner with CURE® magazine to sponsor the MPN Heroes Program,” said Hervé Hoppenot, CEO of Incyte. “Our goal with this program is to create as many opportunities as possible for people with MPNs to continually be heard and supported.”

Visit http://www.MPNHeroes.com to learn more about this year’s MPN Heroes®, the 2016 Recognition Program Rules and Steering Committee members. Individuals or entities supported through funding or directed by Incyte are not eligible for consideration or recognition.

Supporting the recognition of MPN Heroes® and the MPN community is an ongoing effort of Incyte’s Voices of MPN awareness program. For every post made on The Wall of Voices, Incyte will donate $5 to the MPN Research Foundation. For more information, visithttp://www.voicesofmpn.com.

About CURE Media Group 
CURE Media Group is the leading resource for cancer updates, research and education. It combines a full suite of media products, including its industry leading website, CUREtoday.com; innovative video programs, such as CURE Connections®; a series of widely attended live events; and CURE® magazine, which reaches over 1 million readers. CURE Media Group is part of the Plainsboro, N.J.-based Michael J. Hennessy Associates, Inc. family of businesses, which includes the acclaimed OncLive® (http://www.onclive.com) platform of resources for the practicing oncologist. For more information, visit http://www.curetoday.com or http://www.mjhassoc.com/.

About Incyte 
Incyte Corporation is a Wilmington, Del. -based biopharmaceutical company focused on the discovery, development and commercialization of proprietary therapeutics. For additional information on Incyte, please visit the company’s website athttp://www.incyte.com.

Follow @Incyte on Twitter at https://twitter.com/Incyte.

To read related articles, please click below links.

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Lansing patient advocate honored for cancer work

Lenexa woman honored for advocacy in fighting rare blood cancers

Local man honored at MPN Heroes Recognition Event

 

CURE® MAGAZINE TO HOST RECOGNITION GALA FOR HEROES IN RARE BLOOD CANCER COMMUNITY ON DECEMBER 2

Pulitzer prize-winning oncologist Siddhartha Mukherjee M.D., Ph.D., to keynote fourth annual MPN Heroes™ celebration event in San Diego

PLAINSBORO, N.J., and WILMINGTON, Del. (October 6, 2016CURE® magazine is proud to announce the 2016 MPN Heroes™ celebration will take place on Friday, December 2, prior to the American Society of Hematology’s (ASH) Annual Meeting in San Diego, Calif., featuring Pulitzer Prize-winning science writer Siddhartha Mukherjee M.D., Ph.D., author of current bestseller The Gene: An Intimate History, as the keynote speaker.

 

The gala event at the Hard Rock Hotel San Diego will honor the 2016 MPN Heroes™ - individuals who have made significant contributions in the field of rare blood cancers known as myeloproliferative neoplasms (MPNs). The MPN Heroes™ - selected from hundreds of nominated clinicians, caregivers and advocates-were put forward by patients and caregivers for their contributions in the field of MPNs or in the individual lives of people with MPNs. Honorees include patient advocates, clinicians, communicators and research catalysts who provide support and care for those with MPNs, as well as research into new treatments-in many cases while their own lives are threatened by the conditions.

As the keynote speaker, Dr. Mukherjee, a graduate of Stanford University, Harvard Medical School and Oxford University, will share new insights into the causes and treatments of cancer with attendees.

“We are privileged to have Dr. Mukherjee join us as we honor outstanding caregivers and advocates who go above and beyond when caring for people with MPNs, along with leaders and researchers advancing the MPN community and the science of these rare blood cancers," said Mike Hennessy Jr., president of CURE® Media Group. “Hosting this event allows us to recognize this year’s MPN Heroes™ and also showcase everything our company and CURE® magazine support.”

A cancer specialist, Dr. Mukherjee has devoted his life to caring for patients with cancer. His laboratory is on the forefront of discovering new cancer drugs by using innovative biological methods. Dr. Mukherjee is equally devoted to effectively communicating the “story” of cancer through his writings. In his Pulitzer Prize-winning book, The Emperor of All Maladies: A Biography of Cancer, Dr. Mukherjee looks into the origins and causes of cancer, its deadly effect on the human body, how it has virtually enveloped modern civilization, and the epic battles that are taking place to control and conquer it.

The gala honoring the 2016 MPN Heroes™ is made possible with support from Incyte Corporation, a Delaware-based biopharmaceutical company.

“The MPN Heroes™ are an inspiration to the community-setting a high bar through the incredible work, dedication and service they carry out on behalf of those affected by MPNs. We are grateful to be part of this program, working together with CURE® to increase awareness and visibility for the community and support people living with MPNs,” said chief executive officer Hervé Hoppenot of Incyte.

The event will take place during the 58th ASH Annual Meeting and Exposition (http://www.hematology.org/Annual-Meeting), the world’s premier event in malignant and nonmalignant hematology. The meeting provides an invaluable educational experience and an opportunity to review thousands of scientific abstracts highlighting updates in the hottest topics in hematology. Attendees can network with top minds in the field, as well as a global community of more than 20,000 hematology professionals from every subspecialty.

About CURE® Media Group
CURE® Media Group’s flagship product, CURE® magazine, is the indispensable guide to every stage of the cancer experience. With nearly 1 million readers, CURE® is the largest consumer publication in the United States focused entirely on cancer, with broad distribution to cancer patients, cancer centers and advocacy groups. CURE® Media Group’s offerings also include its online resource, curetoday.com; live meetings; a resource guide for the newly diagnosed; and the Extraordinary Healer™ national nursing award. CURE® Media Group combines science and humanity to make cancer understandable. CURE® Media Group is part of the Plainsboro, N.J.-based Michael J. Hennessy Associates, Inc. family of businesses, which includes the acclaimed OncLive® (www.onclive.com) platform of resources for the practicing oncologist. For more information, visit http://www.curetoday.com or http://www.mjhassoc.com/.

About Incyte
Incyte Corporation is a Wilmington, Delaware-based biopharmaceutical company focused on the discovery, development and commercialization of proprietary therapeutics. For additional information on Incyte, please visit the company’s website at www.incyte.com.
Follow @Incyte on Twitter at https://twitter.com/Incyte.www.incyte.com.

###

Media Contacts
For CURE®: Becky Taylor, 609-240-6886, becky@btaylorpa.com
For Incyte: Catalina Loveman, 302-498-6171, cloveman@incyte.com

 

 

 

DR. JENNIFER ARNOLD OF ‘THE LITTLE COUPLE’ TO KEYNOTE 3RD ANNUAL MPN HEROES CELEBRATION EVENT IN ORLANDO

CURE® magazine to host conference celebrating heroes in rare blood cancer community on Dec. 4

PLAINSBORO, N.J. and WILMINGTON, Del. (August 27, 2015) – Dr. Jennifer Arnold, co-star of “The Little Couple” and a neonatologist at Texas Children’s Hospital, will be the guest speaker at CURE® magazine’s 3rd Annual MPN Heroes™ recognition event on Friday, Dec. 4, prior to the annual meeting of hematologists.

Dr. Arnold will be among hundreds of attendees honoring eight heroes who have made significant contributions in the field of rare blood cancers known as myeloproliferative neoplasms (MPNs) at the event taking place at the Renaissance Orlando at SeaWorld® in Orlando, Fla. The heroes will be selected from hundreds of clinicians, caregivers and advocates nominated by patients and caregivers in the months leading up to the recognition event.

MPN Heroes is supported by Incyte Corporation, CancerCare, Cancer Support Community, the Leukemia & Lymphoma Society, MPN Advocacy & Education International, the MPN Education Foundation, the MPN Research Foundation and the National Organization for Rare Disorders.

“This event honors outstanding MPN caregivers and advocates who have gone above and beyond the standard of care for people with MPNs, demonstrating leadership within the MPN community or advancing the science of these rare blood cancers,” said Mike Hennessy Jr., president of Intellisphere Oncology and Healthcare Specialty Group, including CURE Media Group. “Hosting this event allows us to recognize MPN heroes and to showcase everything our company and CURE magazine support. We look forward to welcoming Dr. Arnold as our guest speaker. Not only is she a member of the medical community, she understands the challenges of coping with a rare disease as an individual, as well.”

Dr. Arnold stands at just 3 foot 2 inches and has a rare type of dwarfism called Spondyloepiphyseal Dysplasia Type Strudwick, for which she has undergone more than 30 surgeries. TLC's docudrama, “The Little Couple,” follows the personal and professional lives of Dr. Arnold, her husband Bill and their two children, Will and Zoey. Dr. Arnold also has been involved in healthcare simulation education for the last eight years and is now the medical director of a state-of-the-art simulation center at Texas Children’s Hospital, where she is a practicing physician at the largest NICU in the country.

In December 2013, Dr. Arnold revealed she had cancer, a rare type of cancer stemming from an abnormal pregnancy: gestational trophoblastic neoplasm.  She underwent surgery in addition to chemotherapy for 3 months before going into remission. Dr. Arnold will share her experiences and talk about the importance of a supportive community for those afflicted with a rare disease. She, like the people with MPNs, understands the loneliness of having a rare disease, with few like people to talk with and limited treatment options.

“Raising awareness of rare blood cancers, like MPNs, benefits both patients and their families—inspiring and increasing visibility for the community,” said Hervé Hoppenot, President and Chief Executive Officer of Incyte. “The MPN Heroes program highlights the incredible work and service that individuals bring to those affected by the disease and those dedicated to their care. By recognizing these heroes, we hope to encourage awareness, research and advances for the care and treatment of people living with MPNs.”
Nominations for the MPN Heroes recognition program are being accepted through September 10. To nominate an MPN hero, visit www.mpnheroes.com or download the MPN Heroes Nomination Form. For questions, email MPNHeroes@kruegerandassociates.com.
Supporting the recognition of MPN heroes and the MPN community is an ongoing effort of Incyte’s Voices of MPN™ awareness program. For every post made on the Wall of Voices, a site where patients recognize their MPN heroes, Incyte will donate $5 to the MPN Research Foundation. For more information, visit www.voicesofmpn.com.

About CURE Media Group
CURE Media Group’s flagship product, CURE magazine, is the indispensable guide to every stage of the cancer experience. With nearly 1 million readers, CURE is the largest consumer publication in the United States focused entirely on cancer, with broad distribution to cancer patients, cancer centers and advocacy groups. CURE Media Group’s offerings also include its online resource, curetoday.com; live meetings; a resource guide for the newly diagnosed; and the Extraordinary Healer™ national nursing award. CURE Media Group combines science and humanity to make cancer understandable. CURE Media Group is part of the Plainsboro, N.J.-based Michael J. Hennessy Associates, Inc. (MJH), family of businesses, which includes the acclaimed OncLive® (www.onclive.com) platform of resources for the practicing oncologist. For more information, visit www.curetoday.com or www.mjhassoc.com.

About Incyte
Incyte Corporation is a Wilmington, Del.-based biopharmaceutical company focused on the discovery, development and commercialization of proprietary small molecule drugs, primarily for oncology. For additional information on Incyte, please visit the company's website at www.incyte.com.

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Media Contacts
For CURE: Becky Taylor, 609-240-6886, becky@btaylorpa.com
For Incyte: Catalina Loveman, 302-498-6171, cloveman@incyte.com

 

 

CURE Magazine and Incyte Honor MPN Heroes

 

 

Award reception and gala recognize the work and achievements of individuals dedicated to improving the lives of people living with rare blood disorders


Plainsboro, NJ, and Wilmington, DE – December 5, 2014CURE™ magazine, published by Cure Media Group, hosted the 2nd Annual MPN Heroes celebration reception honoring nine individuals in the field of myeloproliferative neoplasms (MPNs) on December 5th in San Francisco prior to the American Society of Hematology’s annual meeting. The celebratory event honored this unique group of individuals who have made a difference by going above and beyond the standard of care, demonstrating leadership within the MPN community, or advancing the science of MPNs. The celebration was made possible with support from Incyte Corporation, CancerCare, Cancer Support Community, Leukemia & Lymphoma Society, MPN Advocacy & Education InternationalMPN Education Foundation, MPN Research Foundation, and MPN Education Foundation, and National Organization for Rare Disorders.

“The MPN Heroes event is a great opportunity for us to acknowledge the contributions and efforts of these dedicated clinicians, advocates, and caregivers. We are looking forward to doing more events like this across a number of therapeutic areas,” said Mike Hennessy, Jr., President of Cure Media Group.

More than 50 nominations were received and a steering committee that included patients, advocates, and healthcare professionals selected recipients in two categories, the first of which was commitment to the individual. The four recipients in this category included a patient/advocate and three caregivers:

Diane Blackstock, from Hagerstown, MD, and an MPN patient for 37 years, was recognized for running an informative and compassionate myelofibrosis support group on Facebook serving approximately 1,400 patients and caregivers on at least four continents.

Kathleen Vogt, a caregiver from Troy, NY, was nominated for being ‘the rock’ for her patient while working full time and simultaneously raising money to “out-Vogt (vote) myelofibrosis” by establishing the Light the Night Walk in Albany.

Susan Lowden, from Blue Springs, MO, a former hospice worker and enthusiastic caregiver for her husband through his 10-year journey with his MPN, was recognized for the inspiration she provided to find better treatment, provide better supportive care, and to educate others about MPNs.

Timothy Leslie, from Colorado, was nominated for his dedication and unwavering endurance as caretaker for his wife through her illness.

The second category of recipients included individuals whose continuous efforts have had a significant impact on the broader MPN community: Antje Hjerpe, a Carlsbad, CA-based ET patient and advocate, was nominated for her long-term dedication, stewardship, and volunteer service to the MPN Education Foundation.

Zhenya Senyak,a myelofibrosis patient, crusader and publisher of MPN Forum, from Ashville, NC, was recognized for his passionate and accomplished work to help patients truly understand their disease, give them a sense of community, and encourage them to mobilize for change.

David Alexander, from Washington, DC, is an advocate who was nominated for his efforts to help patients keep up with the latest research and publications on MPNs and for his role in the online support group MPN-NET.

Dr. Richard Silver, who is affiliated with Weill-Cornell Medical Center, New York Presbyterian, was recognized for advancing the science of MPNs, his commitment to the MPN community for more than half a century, and for his role in founding the Richard T. Silver, M.D. Myeloproliferative Neoplasm Center at Weill Cornell.

"The MPN Heroes event characterizes CURE's commitment to advancing patient care, through the recognition of outstanding caregivers and advocates in the myeloproliferative neoplasms space. This year's honorees come from across the United States and represent a strong commitment to the MPN community and individuals with these rare blood disorders," said Silas Inman, Director of Editorial and Multimedia for the Cure Media Group.

Separate from the traditional MPN Heroes recognitions, Joyce Niblack, a tireless and extraordinarily effective advocate, received an Honorary Distinction for her efforts in establishing and managing the first online patient community initiative and dedicating the last years of her life to the MPN community. Joyce’s legacy will be remembered throughout the MPN community for helping patients overcome confusion, uncertainty, and fear through community and connection.

In an effort to further increase awareness in the MPN community, Incyte honored the four Heroes recognized for their impact on the broader MPN community by making a $25,000 charitable donation to an organization engaged in MPN activities on behalf of each Hero.

“We are inspired and grateful to this year’s MPN Heroes who unselfishly and tenaciously serve the MPN community,” said Hervé Hoppenot, President and Chief Executive Officer, Incyte.

In addition to honoring these extraordinary individuals, the event featured a stirring talk by special guest speaker Charles Esten, from the TV show "Nashville," discussing his family's cancer journey. Over a decade ago, Esten's daughter was diagnosed with acute lymphoblastic leukemia and is now in remission. Following this experience, Esten has become a honorary spokesperson for cancer education and he and his family have joined the battle to fund the research that will help families who are faced with blood cancers.

Visit http://www.MPNHeroes.com to learn more about this year’s MPN Heroes and for a list of the steering committee members.

Supporting the recognition of MPN Heroes and the MPN community is an ongoing effort of Incyte’s Voices of MPN™ awareness program. For every post made on The Wall of Voices, Incyte will donate five dollars to the MPN Research Foundation. For more information, visit http://www.voicesofmpn.com.

About CURE Media Group
CURE Media Group, through its unique and award-winning products, has been a source of information and inspiration for patients and families on the cancer journey since 2002. CURE Media Group's flagship product, CURE magazine, is the indispensable guide to every stage of the cancer experience. With nearly 1 million readers, CURE is the largest consumer publication in the United States focused entirely on cancer, with broad distribution to cancer patients, cancer centers, and advocacy groups. Through the magazine, live meetings, a resource guide for the newly diagnosed, the Extraordinary Healersm national nursing award, and other books and online tools, CURE Media Group combines science and humanity to make cancer understandable. CURE Media Group is part of the Michael J. Hennessy Associates, Inc. (MJH) family of businesses, which includes the acclaimed OncLive (www.onclive.com) platform of resources for the practicing oncologist. For more information, visit www.curetoday.com or www.mjhassoc.com.

About Incyte
Incyte Corporation is a Wilmington, Delaware-based biopharmaceutical company focused on the discovery, development and commercialization of proprietary small molecule drugs, primarily for oncology. For additional information on Incyte, please visit the Company's website at www.incyte.com.


Contacts:

Cure Media Group
Silas Inman
Phone: (609) 716-7777, ext. 233
E-mail: sinman@onclive.com

Incyte Media Inquiries:
Mariesa Kemble
Sam Brown Inc.
Phone: (608) 850-4745
E-mail: mariesakemble@sambrown.com

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