Governor Larry Hogan 'Still Standing' After Cancer
July 30, 2020 – Jessica Skarzynski
Knowing Your Rights When It Comes to Cancer and Your Career
July 23, 2020 – Ryan McDonald and Jessica Skarzynski
Staying Cool: Cold Caps and Hair Preservation in Cancer
July 16, 2020 – Beth Fand Incollingo and Ryan McDonald
From Cancer to Crowns: One Patient's Journey
July 09, 2020 – Jessica Skarzynski
What's on the Horizon in Metastatic Urothelial Carcinoma
July 01, 2020 – Kristie L. Kahl
What to Know About Skin Cancer
June 28, 2020 – Kristie L. Kahl
Genetic Counseling for Cancer Shifts to a New Era of Virtual Care
June 25, 2020 – Jessica Skarzynski
Addressing Gynecologic Health During and After Cancer
June 18, 2020 – Ryan McDonald
Ethan Zohn: A Survivor in More Ways Than One
June 11, 2020 – Jessica Skarzynski
Survive to Thrive: Improving Sexual Health After Cancer
June 04, 2020 – Ryan McDonald
Raising Awareness Around Skin Cancer
May 28, 2020 – Kristie L. Kahl
Getting a Good Night's Sleep After Cancer
May 28, 2020 – Jessica Skarzynski
Teal on Wheels: Riding to Raise Ovarian Cancer Awareness
May 21, 2020 – Ryan McDonald
Nutrition Tips During a Pandemic
May 14, 2020 – Jessica Skarzynski
Dick Vitale: Working Toward Victory Over Pediatric Cancer
May 07, 2020 – Kristie L. Kahl
Looking Out for the LGBT Cancer Community
April 30, 2020 – Jessica Skarzynski
The Basics of Skin Cancer: Types of the Disease
April 24, 2020 – Kristie L. Kahl
Finding a Purpose Through Metastatic Breast Cancer
April 22, 2020 – Jessica Skarzynski
A Powerful Voice in Head and Neck Cancer
April 16, 2020 – Jessica Skarzynski
Patient-Doctor Duo: The Basics of Myeloproliferative Neoplasms
April 13, 2020 – Kristie L. Kahl and Gina Columbus
A Cancer Survivor's Love of Flying Propels a Passion for Volunteering
April 09, 2020 – Ryan McDonald
Screening for Colorectal Cancer
March 19, 2020 – Kristie L. Kahl
Creating a Community Around Hope for Stomach Cancer
March 12, 2020 – Kristie L. Kahl
Laugh for Life
March 05, 2020 – Kristie L. Kahl
Speaking Out on Non-Small Cell Lung Cancer
February 27, 2020 – Kristie L. Kahl
Finding Purpose After Five Different Cancers
February 20, 2020 – Jessica Skarzynski
Breaking Barriers: An Egyptian Immigrant's Journey with ALL
February 13, 2020 – Kristie L. Kahl
Currently Viewing
Seven Times Down, Eight Times Up
February 06, 2020 – Kristie L. Kahl
A Tale of Two Misdiagnoses
January 23, 2020 – Kristie L. Kahl
Information at Your Fingertips
January 16, 2020 – Kristie L. Kahl
Surviving Pink: A Mother-Daughter Duo on Believing in Hope
January 09, 2020 – Kristie L. Kahl and Katie Kosko
Understanding Precision Medicine in Multiple Myeloma
January 02, 2020 – Kristie L. Kahl
Understanding Genomics in Lung Cancer
December 26, 2019 – Kristie L. Kahl
'Speaking Out' on Legal Protection in Cancer
December 19, 2019 – Kristie L. Kahl
The Blueprint to Facing a Rare Disease
December 12, 2019 – Kristie L. Kahl
Life, Death, Psychedelic Mushrooms and Cancer
December 05, 2019 – Tom Castles
Living With a Rare Cancer
November 28, 2019 – Katie Kosko and Kristie L. Kahl
There's Always Hope in Prostate Cancer
November 21, 2019 – Jessica Skarzynski
The Basics of Lung Cancer
November 14, 2019 – Kristie L. Kahl
How Social Determinants of Health Affect Your Cancer Treatment
November 07, 2019 – Tom Castles
What Is (and What Isn't) Palliative Care?
October 31, 2019 – Tom Castles
Live for Today: One Testicular Cancer Survivor's Journey to Advocacy
October 24, 2019 – Kristie L. Kahl
Triumph Over Cancer: Riding 'Coast 2 Coast'
October 17, 2019 – Kristie L. Kahl
One Survivor's 'Twist' on Cancer
October 10, 2019 – Kristie L. Kahl
Receiving a Lung Cancer Diagnosis in 48 Hours
October 03, 2019 – Kristie L. Kahl
Fighting Physician Bias Against Unmarried Patients With Cancer
September 26, 2019 – Tom Castles
Crowdfunding and the High Cost of Cancer
September 19, 2019 – Tom Castles
'Listen to Your Mother' and Protect Your Skin
September 12, 2019 – Kristie L. Kahl
Navigating Life After Breast Cancer Brilliantly
September 05, 2019 – Kristie L. Kahl
Earning Your Legacy: Cancer Has Nothing To Do With It
August 29, 2019 – Kristie L. Kahl
SupermanHPV: Fighting Against HPV-Related Cancers
August 22, 2019 – Kristie L. Kahl
Human Connection After a Cancer Diagnosis
August 15, 2019 – Kristie L. Kahl
The Gift of Knowing Your Family Health History
August 08, 2019 – Kristie L. Kahl
Cancer Caregivers Need Support, Too
August 01, 2019 – Kristie L. Kahl
The Grateful Patient
July 25, 2019 – Kristie L. Kahl
Kerry Fraser: Facing Off Against Blood Cancer
July 18, 2019 – Jessica Skarzynski
From Patient to Cancer Caregiver
July 11, 2019 – Kristie L. Kahl
A Song for Hope
July 04, 2019 – Kristie L. Kahl
One Melanoma Survivor's Letter to Her Younger Self
June 27, 2019 – Kristie L. Kahl
Finding a Way Forward in Blood Cancer
June 20, 2019 – Jessica Skarzynski
Finding Hope in Darkness
June 13, 2019 – Katie Kosko
What You Need to Know About Genomics
June 06, 2019 – Kristie L. Kahl
The Basics of Bladder Cancer
May 30, 2019 – Kristie L. Kahl
Firsthand Experience With CAR T-Cell Therapy
May 23, 2019 – Kristie L. Kahl
Katie Couric: Advice to My Younger Self
May 16, 2019 – Katie Kosko and Kristie L. Kahl
Speaking Out About Breast Implant-Associated Cancer
May 09, 2019 – Kristie L. Kahl
One-On-One Support Among Cancer Fighters, Survivors and Caregivers
May 02, 2019 – Kristie L. Kahl
Focusing on Adolescent and Young Adult Cancer
April 25, 2019 – Kristie L. Kahl
Giuliana Rancic: This Too Shall Pass
April 18, 2019 – Kristie L. Kahl and Beth Fand Incollingo
Addressing Nutritional Needs in Cancer
April 11, 2019 – Kristie L. Kahl
Drumming Out Head and Neck Cancer with Rikki Rockett
April 07, 2019 – Jessica Skarzynski
Turning Cancer Into Comedy
April 04, 2019 – Kristie L. Kahl
Ovarian Cancer Heroes Come in Many Forms
March 28, 2019 – Kristie L. Kahl and Jessica Skarzynski
'Stopping to Smell the Roses' With Olympic Gymnast Shannon Miller
March 21, 2019 – Kristie L. Kahl and Jessica Skarzynski
The Pink Ribbon Connecting the Community
March 14, 2019 – Kristie L. Kahl
How One Survivor 'Keeps On Keeping On'
March 07, 2019 – Kristie L. Kahl
Scott Foley Opens Up About Caregiving
February 28, 2019 – Kristie L. Kahl
Believing Miracles Can Happen
February 21, 2019 – Kristie L. Kahl
At-Home Genetic Testing: Dispelling Fact vs Fiction
February 14, 2019 – Kristie L. Kahl
An Inside Look Into a Patient-Doctor Convo
February 07, 2019 – Kristie L. Kahl
Comedian Finds Humor in Life's 'Cosmic Joke': Advanced Cancer
January 31, 2019 – Brielle Benyon
Two Doctors on a Similar Path to Help Those with CLL
January 24, 2019 – Kristie L. Kahl
MPN Heroes Make a Difference in the Rare Blood Cancer Space
January 17, 2019 – Brielle Benyon
Funding Research to Eliminate Childhood Cancer
January 10, 2019 – Kristie L. Kahl
Handing a Piece of Life Back
January 03, 2019 – Kristie L. Kahl
A Look Back at 2018
December 27, 2018 – CURE staff
Back on Stage, One Peg at a Time
December 20, 2018 – Brielle Benyon
A Long History of BRCA
December 13, 2018 – Kristie L. Kahl
Tackling Cancer With Purpose
December 08, 2018 – Kristie L. Kahl
Scott Hamilton: When Fear Flips
December 06, 2018 – Brielle Benyon
Mother-Daughter Advocacy Duo Navigates the Cancer Journey
November 29, 2018 – Kristie L. Kahl
Seeing Cancer as a Motivation, Not a Destination
November 21, 2018 – Jessica Skarzynski
The Ins and Outs of Cancer Caregiving
November 15, 2018 – Brielle Urciuoli
Advice for Caregivers: It's Okay to Not be Okay Sometimes
November 08, 2018 – Kristie L. Kahl
Paving the Way for Lung Cancer Research
November 01, 2018 – Kristie L. Kahl
Tiki Barber on Tackling Cancer
October 27, 2018 – Kristie L. Kahl
Cobie Smulders: Not on My Watch
October 25, 2018 – Kristie L. Kahl
Illuminating Ovarian Cancer
October 18, 2018 – Kristie L. Kahl
Talking Below the Belt with Real Housewife Camille Grammer
October 13, 2018 – Kristie L. Kahl
Pregnant With Cancer: How One Woman's Life Changed In Just Three Days
October 11, 2018 – Kristie L. Kahl
A Close "Knit" Community
October 04, 2018 – Jessica Skarzynski
Knowing Your Hereditary Risk
September 30, 2018 – Kristie L. Kahl
Words of Wisdom from a 7-Year-Old Cancer Survivor
September 27, 2018 – Brielle Urciuoli
The Basics of Head and Neck Cancer
September 20, 2018 – Kristie L. Kahl
A Survivor and Her Running Shoes
September 13, 2018 – Brielle Urciuoli
From Cancer to Capitol Hill
September 06, 2018 – Kristie L. Kahl
Let's Start a Conversation
August 30, 2018 – Kristie L. Kahl
Jim Kelly: Never Give Up
August 24, 2018 – Kristie L. Kahl
The Political Patient
August 23, 2018 – Brielle Urciuoli
Running the Marathon Called Cancer
August 16, 2018 – Kristie L. Kahl
Saved by the TV Screen
August 09, 2018 – Katie Kosko
Learning the Basics of Immunotherapy
August 02, 2018 – Kristie L. Kahl
Career After Cancer
July 26, 2018 – Kristie L. Kahl
Support Groups: A Saving Grace
July 19, 2018 – Kristie L. Kahl
A 'Common Sense' Bill to Help Young Cancer Survivors
July 12, 2018 – Brielle Urciuoli
Moving Mountains
July 05, 2018 – Kristie L. Kahl
Immunotherapy Pioneers
June 28, 2018 – Kristie L. Kahl
A Chat With One Extraordinary Healer
June 21, 2018 – Beth Fand Incollingo and Brielle Urciuoli
Talking to Kids About Cancer
June 14, 2018 – Kristie L. Kahl
Celebrating Big
June 07, 2018 – Kristie L. Kahl
Getting "Ballsy" During Men's Health Month
May 31, 2018 – Brielle Urciuoli
Amy Robach: I Live Like I'm Dying
May 24, 2018 – Katie Kosko
Navigating the Waves of Cancer Treatment
May 17, 2018 – Kristie L. Kahl
Real Talk About Genetic Testing
May 10, 2018 – Kristie L. Kahl
Your Cancer Game Plan
May 03, 2018 – Katie Kosko and Brielle Urciuoli
'Teal Army' Heroes
April 26, 2018 – Kristie L. Kahl
Minorities and Myeloma: One Advocate's Story
April 19, 2018 – Brielle Urciuoli
A Candid Conversation With Patrick Dempsey
April 12, 2018 – Katie Kosko
Fans for the Cure
April 05, 2018 – Kristie L. Kahl
Shining a Spotlight on Prostate Cancer
March 29, 2018 – Kristie L. Kahl
Love Over Fear
March 22, 2018 – Kristie L. Kahl
On Cancer, Coping and Creativity
March 15, 2018 – Brielle Urciuoli
Let's Fight
March 08, 2018 – Kristie L. Kahl
Barbells for Boobs
March 01, 2018 – Brielle Urciuoli

Seven Times Down, Eight Times Up

In this episode of the “CURE Talks Cancer” podcast, we spoke with a survivor on two very rare types of cancer, called pheochromocytoma and paraganglioma, and why more research behind these two diseases can help put together the pieces of the cancer puzzle.
BY Kristie L. Kahl
PUBLISHED February 06, 2020
Although many have never heard of them, pheochromocytoma and paraganglioma are two types of rare cancers that are not news to Matthew Capogreco and his family.

With a long list of relatives – nine to be exact – who were diagnosed with these two tumor types, Capogreco himself was 25 when he demanded his physician test him for the disease after feeling symptoms his father had already experienced before his own diagnosis. He was first diagnosed with bi-lateral carotid paragangliomas asymptomatic and has since had multiple bouts of pheochromocytoma and paraganglioma.

With this, his motto has turned to “seven times down, eight times up.”

“The person that perseveres is the one who gets up that one last time,” Capogreco. “That’s what we have to do. We have no choice. If we’re down at the end and we don’t get back up, there’s no coming back from it.”

Now cancer free, Capogreco serves as the president of the Board of Pheo Para Alliance, which aims to empower patients with pheochromocytoma or paraganglioma, their families and medical professionals through advocacy, education and a global community of support, while helping to advance research that accelerates treatments and cures.

“The question is why should other people care about this rare disease that will never touch your life?” he said. “My response to that is this small disease has so many components we know about…if you could solve one small piece of the cancer puzzle it will have a great effect on all of the other puzzle pieces.”

For more information, visit
Be the first to discuss this article on CURE's forum. >>
Talk about this article with other patients, caregivers, and advocates in the General Discussions CURE discussion group.

Related Articles


Sign In

Not a member? Sign up now!

Sign Up

Are you a member? Please Log In