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Leading Us Through CancerLand

We all want our doctors to be experts in treating our diseases, but what else do they need as they lead us through CancerLand? I wish my doctor knew ...
PUBLISHED: JUNE 24, 2015
What do you wish your doctor knew? CURE has partnered with Inspire in their #IWishMyDoctorKnew campaign. The campaign asked patients and caregivers to finish the sentence, “I wish my doctor knew…” in hopes of creating a more understanding relationship. Please share your story in the discussion group.
You feel a lump.
A bump.
A something-isn't-right.
You walk into the doctor's office.
Your heart is racing.
You can't breathe.
You see your future disappearing before your eyes.
 
Clipboard
Forms
Insurance
Blood pressure
Temperature
Weight
Check
Check
Check
 
I wish my doctor knew
check
I wish my doctor knew
check
I wish my doctor knew
check
What it feels like
check
to be a patient
check
to have to be a patient
check
to have to be patient
check
 
White coats
Cold hard statistics
Medical jargon diagnosis
Gobbledy goop prognosis            
Protcols
Hear me!
Standard of care
See me!
Aggressive
Know me!
Maintenance
Love me!
Stable
check
check
check
check
 
Know my fear.
so scared
Take my life in your hands.
all control is you
I am more than my diagnosis.
know my heart
You hold all the power.
your words swim around my head
I wish I was your one and only.
please treat me like your one and only
You don’t want to give false hope.
it’s the only thing keeping me from drowning
You hold my hand
Check.
 
Please guide me
Not just my body
But me
Not just my body to healing or healed or at-least-not-dead-yet
But me, my whole me, my whole self
Please know how much it hurts
Not the body, but the knowing
Please pretend that you care.
I wish my doctor knew.
 
 
Tori Tomalia is many things: a mom, a wife, a theatre artist, a mediocre cook, a Buffy fan, a stinky cheese aficionado. She is also, unfortunately, a repeat visitor to CancerLand. Stay tuned for her continued adventures.
     Facebook: facebook.com/lungcancerblogger
     Twitter: twitter.com/lil_lytnin
     Blog: "A Lil Lytnin' Strikes Lung Cancer" lil-lytnin.blogspot.com
 
 

Talk about this article with other patients, caregivers, and advocates in the Lung cancer CURE discussion group.
Tori Tomalia is a two-time cancer survivor currently living with stage 4 non-small cell lung cancer since May of 2013. Her first cancer experience was childhood osteogenic sarcoma, for which she received chemotherapy and curative surgery, and had been cancer-free for over 20 years prior to the lung cancer diagnosis. Along with cancer, Tori juggles life as a mom of 3 small children, a wife, a theatre artist, writer and lung cancer awareness advocate.
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