Opinion
Video
Navigating RRMM: Helpful Resources and Advice for Patients Facing Disease Progression
Author(s):
Panelists discuss how multiple myeloma support resources range from formal organizations like the International Myeloma Foundation and Multiple Myeloma Research Foundation to online patient communities, hospital-based support groups, and specialized social media networks, with advice for newly relapsed patients emphasizing the importance of allowing emotional processing before taking action, seeking second opinions from myeloma specialists, asking detailed questions about all available options including clinical trials, connecting with patients who’ve undergone similar treatments, maintaining hope amid setbacks, and recognizing that relapses, while challenging, often open doors to novel therapeutic approaches that can effectively control the disease for extended periods.
Video content above is prompted by the following:
- What resources or support groups have you found most helpful during your treatment journey and what advice would you give to someone who just learned that their disease relapsed?
