Finding Trustworthy Myeloma Information After Diagnosis

Patients emphasize the critical importance of finding reliable information after a multiple myeloma diagnosis, moving beyond the initial, frightening internet search. Lou, a former educator, turned to trusted cancer care institution websites like Mayo Clinic, MD Anderson, and Dana-Farber for authoritative facts. A key resource for many was joining a local patient support group sponsored by the International Myeloma Foundation (IMF), where experienced patients shared vital insights and vetted sources. Experts and patients alike recommend foundational websites like the IMF, the Multiple Myeloma Research Foundation (MMRF), and HealthTree for up-to-date, trustworthy information on treatment options and managing side effects like dexamethasone. Importantly, Todd highlights the evolving landscape, advising newly diagnosed patients to learn how to use AI tools like ChatGPT with specific prompts to curate current, research-based data. This strategic approach transforms the patient journey from one of fear-driven searching to empowered, informed partnership in their cancer care.