The Care Partner’s Role: Shared Decision-Making in Myeloma

Shared decision-making empowers multiple myeloma patients and their care partners to actively collaborate with the medical team on treatment choices. This model is crucial for aligning care with patient priorities, like delaying a follow-up appointment to attend a major life event or modifying a drug due to debilitating side effects. Panelists stress that the doctor's role is to present medical options, while the patient and care partner must communicate what matters most for quality of life. Success stories include advocating for a treatment site closer to home despite insurance hurdles and switching a supportive medication to reduce toxicity. This proactive partnership helps reduce regret and ensures care plans are medically sound. The key is using your voice in all decisions, from major therapies to supportive care, ensuring the patient’s values guide the myeloma treatment journey.