Rare Cancers

FOG-001 received fast track designation after early study results showed tumor shrinkage in all evaluable patients with desmoid tumors.

Cindy and Katie share how caring for parents with cholangiocarcinoma led to friendship, support and advocacy through the Cholangiocarcinoma Foundation.

Thymoma is a rare cancer of the thymus that can be treated with surgery, radiation, chemotherapy or immunotherapy depending on stage.

Tamron Little was diagnosed with peritoneal mesothelioma after childbirth and now, 18 years later, she says survivorship is lifelong.

In phase 3 DREAM3R, first-line Imfinzi plus chemotherapy showed survival and response benefits in advanced mesothelioma, but results were inconclusive.

A biologics license application for PVEK has been submitted to the FDA for blastic plasmacytoid dendritic cell neoplasm, a rare blood cancer.

Adrenal cancer is rare, but surgery, medicines, chemotherapy and clinical trials can help patients based on stage, spread and overall health.

Tending my garden and observing nature teaches me resilience, presence, and growth, helping me carry joy and sorrow while living with Lynch syndrome.

When I think about standing up to cancer, I cannot separate the words from my own story.

When I was diagnosed with peritoneal mesothelioma at 21 years old, the doctors gave me 18 months to live; that was 18 years ago.

I was facing rare mesothelioma alone at 21 years old, but sharing my story connected me to a community that offers hope and strength to keep fighting.

Support and research for epithelioid hemangioendothelioma are growing, with the EHE Foundation helping connect patients to expert care and resources.

I survived peritoneal mesothelioma thanks to the love, prayers, and support of family, friends, and strangers who reminded me I was never alone.

Treatment options for patients with epithelioid hemangioendothelioma vary dependent on disease status, but more therapies are under investigation.

Dr. Michael Wagner covers the basics of epithelioid hemangioendothelioma, a rare vascular cancer, spanning symptoms, diagnosis, treatment options and more.

Tamron Little was diagnosed with peritoneal mesothelioma in 2007 as a 21-year-old new mother. Catch up on Tamron's blogs here!

Surviving cancer wasn’t the end of my story; it was the start of redefining life, finding purpose and offering hope to those walking behind me.

I finally felt like a survivor the day I heard my 18-month scans were clear, shifting from fear to faith and realizing I was not just surviving — I was thriving.

DPOAE testing showed no hearing loss in children with retinoblastoma treated with intra-arterial paraplatin, suggesting preserved cochlear function.

After walking alone in Chicago’s Cancer Survivor’s Walk, I found strength, healing and a renewed commitment to live fully and authentically — starting now.

In this Q&A, Carly Stafford Dixon discusses her lymphoma journey, recovery with CAR T therapy, and mission to raise support for young adults with cancer.

Dr. Neha Mehta-Shah shares how patients can better understand their subtype of rare lymphoma, as well as expands on the challenges these patients face.

The FDA has granted Rare Pediatric Disease Designation for NEO100 in the treatment of pediatric-type diffuse high-grade gliomas, a type of brain cancer.

Melinda Bachini is the Chief Patient Officer at the Cholangiocarcinoma Foundation and a 15-year survivor of cholangiocarcinoma.

The FDA has accepted a priority review sNDA for Welireg in adults and pediatric patients with advanced or metastatic pheochromocytoma and paraganglioma.